My naughty Brain ,& Body

[Vvalerie]

Wow pleased to see others like myself Coordination problem & unable to keep my body still a lot of the time

[Bailey09]

Hi Vvalerie

Yes I'm the same my short term memory is terrible but long term is ok coordination well it's not good, I also have alot of tremors all over plus spasms and many other s .This has been going on for 3 years now and I've got worse instead of getting better, with this disorder of have develop RLS Fibromyalgia, IBS , Depression, Anxiety, Derealization and Depersonalizion, Eye migraines, Chronic pain, and many more

Regards Susan x

[Vvalerie in reply to Bailey09]

Yes this is dreadful to live with , have you seen a Neurophysiotherpist there is some hope but it all about retraining your brain or so I have been told , I have got to believe that I can be helped , I to have many other medical conditions inc chronic back pain which I’ve had for 25 years its beyond what any one should live with only diagnosed a couple of weeks ago I have even forgotten how to spell & because I am embarrassed of how I am, hardly socialise at all,.will write againwhen not so tired may I ask are you extremely exhausted all the time ?

Thanks for replying

[Bailey09 in reply to Vvalerie]

I'm always exhausted as I don't sleep for long I go to bed really tired but once I'm in bed I can't sleep I must have around 2- 3 hours sleep. I just have not got the engage to do anything but I have to get up to let my lovely dog out talk soon

Take Care

[Grumpyoldmaid99 in reply to Bailey09]

Hi, wow me too. Far too many people have same symptoms for this to be "imagined". Fnd in my case has been a dismissive diagnosis, is I was diagnosed then discharged. What now??

[Bailey09 in reply to Grumpyoldmaid99]

Hi Grumpyoldmaid99

You could ask your gp for a referral to see a neurologist , cause you really need physio, therapy talk that's explaining FND , counselling and maybe talk about what medication is best for you for your back there is no medication for FND

Best of luck and take care x

[Grumpyoldmaid99 in reply to Bailey09]

Hi the counselling is the biggest stumbling block. Medicated to the hilt and seeing physio on & off. Seem to have been written off and dismissed!!;

[Daesin]

Yes, you are in the right place. During PT today I had a slight malfunction and popped myself in the nose with my own hand.

Welcome to the forum.

[Vvalerie in reply to Daesin]

Thanks for replying. Hope you were not hurt

[Daesin in reply to Vvalerie]

Just my pride, and that gets left at the door anyhow, 😀