Could I develop FND

[Libertyedwardslovely]

I have autism but don't have FND could I develop FND

[Brokendeer]

Hi, anyone regardless of their genetics, family history or already existing medical conditions can develop FND. But you are no more likely than anyone else just because you have Autism.

Like most conditions; there needs to be a series of unique factors happen with that person to cause FND and so I would stick with this saying:

`Don't Trouble Trouble, until Trouble Troubles you!'

In other words, try not to think or worry about possible bad things, try to focus on the actual here and now issues of your life.

Look for the calm in the Storm!

[Bulldog07 in reply to Brokendeer]

Seems in our family , genetics are strong , looking back my mom from age 40ish suffered fatigue , muscle weakness n as the years went on couldn’t get about at all without aids , last year of her life was practically chair n bed bound , looking at my symptoms I’m going down same path , my daughter as fybro n so does my sister , my daughter is also being monitored for MS as she as liaisons on her brain , I’m going to see private neurologist today for second opinion on my FND as my nhs neurologist requested it on nhs but I’m gonna have to wait aground 18months for appointment 🙄, hopefully get some answers 🤞

[Brokendeer in reply to Bulldog07]

Hi so sorry to hear the wide range of terrible symptoms in your family. I must admit I was checked for MS for 3 yrs and I enquired about Hereditary spastic paraplegia as well.

As HSP is a general term for a group of rare inherited disorders that cause weakness and stiffness in the leg muscles. Symptoms gradually get worse over time. It's also known as familial spastic paraparesis or Strümpell-Lorrain syndrome.

Finally after 5 years of investigations I got told it was Motor FND diagnosis.

Look for the calm in the Storm!

[Bulldog07 in reply to Brokendeer]

Thankyou for that reply , I’m so glad u mention HSP , my granddaughter was diagnosed with that when she was six , I only said to my daughter the other day , I wonder if her condition was similar to ours , thanks

[Mattie21]

Not all people with fnd get autism...but it sounds like quite a few do....Autism diagnosis is associated with a lot of things including much higher rate of lgbtiqa+ and risk of developing a parkinsonian disorder (32 times higher than those without asd). I think everyone should be told that when diagnosed.About your question... Fnd could be an intermediate diagnosis between asd and parkinsonian condition. More research is needed. These facts though can be a wake up call to take calculated risks to find ways of living that take less energy, working in jobs that suit people with asd for example low sensory, flexible hours and high paying so there's time for downtime and not living in constant fatigue, also to live most authentic self. I knew but didn't take action when I could have...and waited until I had cancer/surgery which started fnd symptoms before I was forced to push myself out of comfort zone to find more effective ways of living. Somewhere between worrying (as there's no definites) and being aware of potential risks is a middle ground of putting in place premptive strategies ...I disagree with sugar coating possible truths just because they make for uncomfortable reading. Like if asd and fnd didn't frequently co occur, why would they be running a study on it?