headaches???: Hi all, after 10 yrs am... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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headaches???

cocoferraro profile image
4 Replies

Hi all, after 10 yrs am still getting really bad head pain upon standing up, like a metal band around the head which is being tightened, just try to work through it, but wondered if any one had similar???

So am going to tag onto the end of this that I have adopted a tiny poodle from Battersea dogs home, she is givingme so much luv, and I have so much luv to give her, It has not made FND go away but makes it a little better to have my furbaby to look after!

Hearing from you all means so much to me. XXXXXX

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cocoferraro profile image
cocoferraro
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4 Replies
tabey profile image
tabey

I do get terrible headacres and they feel like i got my head in a clamp they are horrible and nothing i do or take ever takes them away.Aah your poodle sounds lovely i agree with you 100% im a cat man myself but having him run up to me and bash his head into me is just priceless but when my 15 year old bashes me with her head thats not so priceless lol

😂I think as long as we can still lauth and love with this horrible condion we be fine

Take care

Tabe and sabre cat 😃

cocoferraro profile image
cocoferraro in reply to tabey

Hi sweetie,Does yourhead pain last for long?

Mine stays with me for 15 mins or so, but is worse when I have been sitting down for a long time, have been all through it with my doc, maybe upon rising blood pressure etc, but she has checked it all and all is fine, leaves me feeling like a fool!

Your cat sounds cool, mine used to do the same thing.

Do agree that if you can laugh then it makes it 10 times better, I know its not a laughing subject, but my husband has had to pull me out of several hedges that I have fallen into due to balance issue, and nearlly wet ourselves laughing.

But laughing is the best medicine.

Thank you for your reply, I feel that I am not alone,

Much luv to you and yoursxx

210272 profile image
210272

Hi Cocoferraro,Have you had your blood pressure checked and/or been assessed for migraine? Orthostatic intolerance might be contributing to you getting head pain (your description is excellent) when you stand up. I would ask your doctor about this and also ask for a referral to a migraine specialist, if you haven't already had one.

Having a pet is a really good step forwards, in my not remotely humble blah blah blah :)

cocoferraro profile image
cocoferraro

Hi honey,Sounds crazy but I never thought of asking to referal to miagraine expert??!!

My doc knows all about it but thinks it is just another symptom of FND.

But you have nowgo me thinking, and I am going to ask for a referal,

Many thanks, gosh, never thought!!!!

Me and my poodle Twinkle send you much luv, thank you so muchX

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