Different symptoms of FND

[AngieB68]

I have FND and I am aware that there are others whose symptoms vary in type and severity. Is there anyone who experiences slurred speech, swelling of the cheeks and droopy eyelids with pain associated with this?

[Christy71]

Hi Angie, my first time replying on here. Yes I had severe speech problems which resulted in speech therapy which proved invaluable. Now when tired or stressed it happens again but not to same extent. I have also had bells palsy previously and find the symptoms that you describe exactly the same. I also developed a facial twitch which seems to be same side of my palsy. After this covid situation why not ask your doctor to refer you to specialist if not just to assist with physio. Take care!!

[AngelaB-1968 in reply to Christy71]

Good morning

Thank you so much for your reply. At least I am not alone! I am under neurology at the moment who initially diagnosed me and work in conjunction with them but yes I will ask if there are any specialist.

[Christy71 in reply to AngelaB-1968]

Ah that's great then. Ask about ENT Dept and see if they could be of assistance. That's who I saw for my palsy. All the best xx

[AngieB68 in reply to Christy71]

After I had Bells Palsy I was referred to ENT who gave me various tests but then said I my hearing is less in my left ear which I noticed after the Bells Palsy. I also went for an eye check but with a specialist who said that I have pressure build up behind my left eye which is the result of having headaches on the left side of my head. It seems that this flutuates as I went for another eye check which I have to do yearly with the opticians due to wearing glasses and also having diabetes in my family and was told that the pressure is low behind my left eye. They are monitoring this.

[Westie_1]

Hi Angie I have slurred speech swelling of the cheek and my eye on the left goes droopy and I also struggle to swallow on the left side of my mouth plus get pain down left side of my body. I haven’t had any therapy or bloods yet but have had scans I’m going to see a new neurologist on Friday to confirm if I have FND or not? So no you are not alone!Just try and rest as much as possible if you can and good luck with getting help for your symptoms 😊

[AngieB68 in reply to Westie_1]

I try to rest as much as I can but I work full-time in a private mental health hospital so difficult to do although I am leaving on time now which I have not done for a very long time!

[Westie_1 in reply to AngieB68]

It’s great that you are now leaving on time! I have a full time job in compliance but it’s getting harder and harder to concentrate plus it’s not an easy job to do but I doubt yours is either?! Good luck to you and I find this sight has helped me a lot... There are a lot of amazing and knowledgeable people on here who give great advice or tell you it’s ok with what we are all going through X So I do stay as positive as much as possible 😊 Take care of yourself X

[Funkyphil71]

Hi Angie I get the slurry speech thing and my speech goes altogether,I can wake up like it or it can appear in hours with lots of other symptoms,as Christy said try and get on to a speech therapist or practice your words,my therapist gave me the word buttercup to practice and the alphabet,basically retraining the brain on every episode.

I think every one gets different things that go wrong.

You are not alone,somewhere there is a room full of slurry sober people 🤦🏼‍♂️🤪 just make hay when the sun shines.

Regards Phil

[Eunomi in reply to Funkyphil71]

FND has varied functional symptoms, that are also transient in characteristic.Just been diagnosed, however my consultant was not convinced. Trying to get a second opinion, but not sure how to find an appropriate FND consultant.

As a retired nursing sister, I have been researching the condition.If it helps

have found Professor Jon Stone from Edinburgh, on u tube doing a webinar on FND. Excellent presentation with FND Hope.

One of my problems is sight loss which gradually gets worse as my fatigue increases.No choice but to go and rest not knowing if it will return after resting.

Got more help from RNIB and sight Derbyshire than medical professionals.

[AngieB68]

Wow, I really did not know there were so many people experiencing the same or similar symptoms as myself. I have been to speech therapy which was an excellent help. They also took voice clips from me to ensure that if anyone else saw me, they could listen to how I sound when my speech is not very good and how difficult it was for me to pronounce certain words as I found it difficult to form a circle so yes butter is very difficult for me say when I am having an episode with my speech.

[Boeingbabe]

Angie I think I replied already but in case it went to someone else I think you’re suffering hemiplegic migraines. Take photos of episodes and show to a migraine specialist. I was mistakenly dx with fnd! Taking sibelium 5mg 5 days out of 7. Fewer episodes of hemiplegic.