FND Nightmare of Brain Fog & Pain

[Mygeordiebud]

Over the last 7 months the paralysis of my limbs is getting worse time of day doesn’t matter to it. Left are or both arms and even my legs I often wait for movement to come back provided I’ve got nothing on that day, if I do have something on I ask my wife to bend a arm or leg but the pain involved is through the roof, my wife says they are a ton of dead weight buy using this method I can get limbs responding quicker but the pain when wife moves limb is a 12 out of 10 but have no option if I need to go doctors etc.

The FND really does make me feel so low, Tonight wife kindly makes me a coffee try to pick it up which I succeed but then my hand decides to jerk really hard and there goes the coffee all over the flow this to is happening more and more.

Brain fog, we can be talking about a subjects I get a slight distraction and I cannot what we were talking about, have to always asks what we’re we talking about. I can be talking and the word I need takes off into a distance in the fog, I tend now not to talk to people if I can help it. Cannot now pronounce words correctly don’t know why I have ended up with this nightmare of a disease when first diagnosed with FDD my neurologist said it will go away in about 6 months time 3 years later and and that has happened is getting worse. I just want to scream out loud and think of death but I have my beautiful wife who mad progressive MS so need to be here for her otherwise I don’t think I would still be alive

[CharlieG87]

I recently went to an appointment I waited 18 months for,for the nerve pain and tremors they have prescribed anatriptaline. Might be worth a try

[Mygeordiebud in reply to CharlieG87]

Cheers