My fnd journey : Hi, everyone I wanted... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,652 members2,948 posts

My fnd journey

Preciousboys profile image
2 Replies

Hi, everyone I wanted to share my story.

It all started in 2016, when I was walking then all of a sudden I collasped, to the floor I tried to move, but my whole body would shake uncontrollabley. I was completely paralyzed from head to toe. I tried to talk but no words were coming out. I straight away got rushed to hosiptal and was admitted onto the ward. They thought I was having a mini stroke. I stayed in hospital for one week. And the neurologist told me that it will never happen again. That was the beginning of my fnd journey.

I carried on living my life as normal, like their was nothing wrong with me. Then slowly but gradually I started to deteriorate. I went from being able to walk, talk and move to being in a wheelchair, unable to speak, paralyzed, and having multiple sezuires a day. My life completely changed.

I kept going back and forth to the doctors, as I knew something was seriously wrong. And I kept getting the same answer, you will be okay, just rest. They kept saying I had viral infections, and were giving me antibiotics. Until the constant visits to the doctors and being persistent finally worked. And I was referred to Queens Square, and that was where I finally got answers and a diagnosis which was Functional Neurological Disorder.

Written by
Preciousboys profile image
Preciousboys
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Daesin profile image
Daesin

Welcome. I hope you find support here. There are many voices. No two are the same but I bet you recognize a few. Blessings to you all.

1952blonde profile image
1952blonde

I really hope you keep getting the support you deserve 😢

You may also like...

This FND is kicking my @$$

speech, blurry and double vision, some dizziness and moving slow and when I exert any energy I feel...

So fed up with my FND

to walk to my corner shop a couple of times next week which is for my kids about a 10 minute walk so

Update of my FND of 7 years

a while since I posted on here just spoke to my doctor and I could do with some advice as I seem to...

My 9 year old has fnd

She has walked with a crutch since February but since 2 weeks ago she has been in a wheelchair as...

Could my FND actually be dopamine deficiency?

My neurologist has just diagnosed me as FND and has suggested psychotherapy. However, I feel certain