I am old to this site and dont write often, I have had FND for 6 years.
I fear that my short term memory is getting worse, I will have to stop in a conversation because I cant remember a word or what I want to say, My brain scan showed small artery vascular disease, but when I asked my doctor about this she said that its nothing to worry about, what does everyone else think please??????
xxxxx
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cocoferraro
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I’ve now had FND for 3 years apart from the paralysis I suffer with my limbs my short term memory is terrible.
I can go to the kitchen from my lounge and by the time I’m in the kitchen I’ve forgotten what I went there for.
I can start to read the paper but by the time I’m at the end of a paragraph I’ve forgotten what I was reading.
Like you can start talking to someone and I cannot find the word needed even though I’ve used the word thousands of times by concentrating on trying to find the word I’ve then forgot what I was talking about.
I cannot remember what day it is.
Been tested my long term memory is ok but my short term is terrible.
I just have to write appointment down straight away on paper otherwise by the end of the phone call I’ve forgotten appointment time and date.
My wife helps me a lot as I tell her my appointments straight away.
My brain scan also showed that I have small artery vascular disease.
When I’m put under pressure say a PiP assessment I find I’m even worse trying to find the words needed to reply so I worked out being stressed make my memory problem even worse so I try not to get to stressed.
Thank you so much for your reply, I am exactly the same as you!!!
Do you think that we should as gp for another scan to look at the white fossi small vasular disease?? I also have done really bad in my PIP assesments, it made me mad to think that they don't reallyknow the person I reallyam, and like you, I was very stressed about it so did really bad, what do you think?? xxxxx
Been been told by Rosa Burden Center neurologist that memory loss is very common with FND , she advised doing word searches etc to try and keep mind going she advised there is not a lot that can be done and it’s down to me to try and keep my mind occupied.
I’ve accepted that my short term memory is shot but if I develop other new symptoms to contact either my doctor or her which I will do.
The same with me-if it gets worse then to contact doc, but alwasys good to do crosswords etc, as it can only help to keep the mind active. I know this is hard, but please try to go with it otherwise you will be forever feeling bad. My husband makes me laugh as when I cant remember the name of something he always answers weird and wonderful names, but if you can laugh about things (which I know is hard as had this for 7 years) then life will be better for you which is all its about isn;t it.
I think you need to find a new neurologist that specializes in your problem. I believe there is medication for it. So, now that you know that you don’t have Functional Disorder. It’s a brain problem. Mayo told me the same thing and I found out that I have HEDS
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