MEMORY LOSS GETTING WORSE AFTER 6 YEARS - Functional Neurol...

Functional Neurological Disorder - FND Hope

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MEMORY LOSS GETTING WORSE AFTER 6 YEARS

cocoferraro profile image
8 Replies

Hi everyone,

I am old to this site and dont write often, I have had FND for 6 years.

I fear that my short term memory is getting worse, I will have to stop in a conversation because I cant remember a word or what I want to say, My brain scan showed small artery vascular disease, but when I asked my doctor about this she said that its nothing to worry about, what does everyone else think please??????

xxxxx

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cocoferraro profile image
cocoferraro
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8 Replies
Bailey09 profile image
Bailey09

My short term memory has got worse but my gp said that I couldn't have a other scan , I asked why he said I only had one two years ago.

You could asked a different doc to have a look at it x

cocoferraro profile image
cocoferraro in reply to Bailey09

Thank you for replying, i am thinking about your comments xxxxx

Mygeordiebud profile image
Mygeordiebud

Hi

You’re not alone with this problem.

I’ve now had FND for 3 years apart from the paralysis I suffer with my limbs my short term memory is terrible.

I can go to the kitchen from my lounge and by the time I’m in the kitchen I’ve forgotten what I went there for.

I can start to read the paper but by the time I’m at the end of a paragraph I’ve forgotten what I was reading.

Like you can start talking to someone and I cannot find the word needed even though I’ve used the word thousands of times by concentrating on trying to find the word I’ve then forgot what I was talking about.

I cannot remember what day it is.

Been tested my long term memory is ok but my short term is terrible.

I just have to write appointment down straight away on paper otherwise by the end of the phone call I’ve forgotten appointment time and date.

My wife helps me a lot as I tell her my appointments straight away.

My brain scan also showed that I have small artery vascular disease.

When I’m put under pressure say a PiP assessment I find I’m even worse trying to find the words needed to reply so I worked out being stressed make my memory problem even worse so I try not to get to stressed.

Mark

cocoferraro profile image
cocoferraro in reply to Mygeordiebud

Thank you so much for your reply, I am exactly the same as you!!!

Do you think that we should as gp for another scan to look at the white fossi small vasular disease?? I also have done really bad in my PIP assesments, it made me mad to think that they don't reallyknow the person I reallyam, and like you, I was very stressed about it so did really bad, what do you think?? xxxxx

Mygeordiebud profile image
Mygeordiebud in reply to cocoferraro

Been been told by Rosa Burden Center neurologist that memory loss is very common with FND , she advised doing word searches etc to try and keep mind going she advised there is not a lot that can be done and it’s down to me to try and keep my mind occupied.

I’ve accepted that my short term memory is shot but if I develop other new symptoms to contact either my doctor or her which I will do.

Mark H...

cocoferraro profile image
cocoferraro in reply to Mygeordiebud

The same with me-if it gets worse then to contact doc, but alwasys good to do crosswords etc, as it can only help to keep the mind active. I know this is hard, but please try to go with it otherwise you will be forever feeling bad. My husband makes me laugh as when I cant remember the name of something he always answers weird and wonderful names, but if you can laugh about things (which I know is hard as had this for 7 years) then life will be better for you which is all its about isn;t it.

please do take careX

redhead63 profile image
redhead63

I think you need to find a new neurologist that specializes in your problem. I believe there is medication for it. So, now that you know that you don’t have Functional Disorder. It’s a brain problem. Mayo told me the same thing and I found out that I have HEDS

redhead63 profile image
redhead63

Get rid of that fool. It’s your brain and health

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