There forget to tell you what you have?

[Tixie]

Last year I was in hosptal I took alook like a Stroke I was taking ? So I was taking over to the Stroke Unit they where watching me ? To see how I was coping? but they notice that I was walking very slower and that my stick with me on my right side ? But I was the younger patiant on the ward ? The doctor came and seen me Itold him that I was stuffer from headaches crusters what I got told up in the Queen Elizabeth Hospital.? So I got out of the Stroke Unit but been told I,ve got migrine with hemiplegic featuers and a functional gait disorder. That is in my discharge letter to my doctor. So I had to go back up to the Stroke Unit for a check the fellow month that,s when I got told about my FND me and my son was shock and I said to the person who told me? I should be told the Year Before ? I was shock. But now I can said ( I,m on the black russ voda) that when I walk drunk.? I can say that I have fun with mine.

[Keepstrong]

😞😞🤗🤗🤗 So so sorry this has happened you Tixie.

I too suffer with what's called hemiplegia Migraine weakness.

But some years way back in 1999 I had what they fogged me off with ( rare form of Fibromyalgia and also myalgia Encephalitis with a mini stroke. I had no power what so ever in my right side. The right side my face and my eye was like someone just pulled it right down from the top of my scalp to the tip my toes. I had no speech it was just totally stuttering and stammering for a full 3 months.

My face is still left with a a little bit of droup but I got my movements back an 70% of my power and my speech back 3 months later with intense physiotherapy occupational therapy and speech therapy.

But since then I had about 20 maybe more little turns similar to these symptoms that go once I get rest do the physio they taught me.

Now 4 months ago again they thought stroke but this time they thought it was a hemiplegia Migraine stroke.

(Just like the one in 1999) ????????? I was totally gob smacked. Like you we had not been told this. We were told you have these conditions of FMS an a weakness from migraines and a year later told you have them 2 conditions but also. M. E and most people are not familiar with any these 3 conditions so you just have to research and find out about it yourself because we too are only learning its not a imagination illness its quite physical an can be quite disabling.

Now I'm being told the very same about Neurological functional disorder that they think I have since I got the other 2 that's in the same family condition.

I'm so sorry your gone through your turmoil of not being told a year ago. It's 2019 now an I was only told 4 months ago it was a Migraine stroke I had in 1999 an I'm going through similar now.

I wish you wellness and pain free moments dear friend. Please always have a wet tea towel in a freezer bag in your freezer an bring yourself to a dark but not jet black room as that will just make you feel nauseated, an place the cold frozen bag with the frozen tea towel into a dry towel an place it onto the back of your head where you feel the 2 pumps just over the end of your head for 2 minutes and then place it on one temple and then the other an then let it rest across your eyes and forehead for a while then move it back around the other locations again. But firstly take 2 paracetamol if you can with strong tea as the caffeine in the tea will help also. Then use the ice bag of tea towel in a dry towel. I hope this will help you. Sending comforting hugs with healing light you

Way. Be well and keep strong. Ce. 🤗🤗👼🙏