Lifestyle Choices with FND

[ScarlettW]

Hey guys,

Recently been diagnosed and feeling pretty upset. I’ve always been ill, constant fits and weight loss as a kid. Was tested for everything under the sun in and out of hospital. Cramps, pins and needles and I used to get my neck and back stuck and not be able to move. The worst part is I’ve practically been completely dissociated from my body for my whole life and I’m now 24. I’m tired of feeling like this.

It started to get a lot better with osteopathy and thought I was cured but it seems stress is the big problem in this situation so it’s likely to come back.. How does everyone manage it? I’m currently on anti-depressants which are helping but I am a singer and performer which naturally comes with stress from having to be on stage. Does anyone have any tips on how to deal with the after effects? I so easily am drained and feel weak after doing anything I put my energy into, even speaking to friends and giving them advice or something as simple as that. At the moment, I keep losing weight- I used to be 9.5 stone I am now very underweight at 7.5 stone and I love my food! Any help would be much appreciated.

[redhead63]

I also was diagnosed with NFD, which I do not have. I was diagnosed with Ehlers Danlos Syndrome about 3 weeks ago. I went to an Geneticist