New here and confused and irritated. I would like to share my story and timeline to see if anyone else has had the same thing. Sorry if is really long.
My symptoms started about 3 years ago with my head fogging up occasionally. As this kept getting more and more i started losing my sense of smell. By January 2013 i began getting stiff on my right side. (Every symptom I tell you only affects the rights side, left side is 100% normal) by may I started a faint tremor ( was told not diagnosed with essential tremors on my left side at age 14).
In June my wife and I had moved back to our home state to help with family. Starting in August my head was almost completely fogged and inwas progressively getting more stiff. My smell had been almost completely gone minus smelling certain ingrediants in foods. It was so far gone i couldn't even smell a skunk. My stiffness was now on my neck, shoulder and chest area.
Instarted having difficulties with my right leg in October. My tremor had slightly worsened and my foggy head was now full time. This is when I decided to see a doctor. My testing started in December. So far I have had an ultrasound on my thyroid, MRI of the brain and spine, EEG, and tons of blood work. Everything came back normal. I was even tested for the rarest of metabolic disorders.
Started seeing a neurologists in Jan. 2014. I was then told it was young onset parkinsons. Next visit I was told it looks like CD. I said ok what do we next. The Neuro said lets run more test. I then was able to get into a movement disorder specialist. She said it looks like FND and gave me the Neurosymptoms website to look at. At this point my wife and i were relieved it wasn't PD, the website didnt offer any evidence of FND for me.
This will bring me to today with a list of symptoms and what i have been told so far. I have seen 3 neurologist. One said CD, one FND, and the last said he doesn't know. I have seen 2 neuropsychiatrist. One said it was organic (parkinsonian type issues) and the other said he didn't know. However there was no evidence of stress, anxiety, or depression causing these issues. CD out the window.
Symptoms now (again only affects the right side. Left side is 100% normal)
Hard time understanding
Hard time talking sometimes
Loss of smell
Loss of balance
Stiffness starting at the base of the skull running down the whol body
Right arm doesnt swing
Charlie horses in my toes
Resting tremor right hand and wrist
Tremors of the jaw and around the mouth
Very poor sleep
Only dream about once a month
Light drooling while awake
Muscle spasms (majority on right side and a few on the left)
This is all I can think of now. I'm sure I missing one or two.
All these have been progressing slowely with no stopping. I have a day or two when the symptoms are not as bad, but never go away completely. My physical therapist also thinks it is PD, but no one cares what he thinks except me. He worked on me for 2 hours a week for several months and has seen all my movment issues.
Any comments on whether anyone thinks this is FND or knows someone with FND that has these same issues? I was told by a pathologists it could be functional parkinsonsim which apparently more rare the PD itself. Any help is welcome.
Sorry for the long post and thank you for your time,