NEVER GIVE UP EVER!!!!!!!!!!!

[skifast]

This is something I have fought and dealt with for a long time. FND is one of the most devastating things that have eve happened to myself and my family's welfare. I have learned to embrace this horrific situation. Partnering with FNDHope.org after being diagnosed to help advocate for other patients and also help Drs who do understand our situation develop new studies and protocol and understanding to the medical community about FND. I also speak at Denver University psychology dept. about FND and adaptive sports correlation to fight the battle of FND. Specifically International Paralympic Skiing and training with the fear vs fear battle of the skiing at a high level and the battle of the body/mind.

[LEEJUNFAN]

Hi there,

Excellent post, highly inspirational and full of hope.

Thank you so much for posting and hope to hear from you again.

You give my wife who has FND, myself and everyone on here encouragement for this, as you write, devastating of conditions.

All our very best wishes!

Tony & Kim xx

[DMA1664]

Brilliant little piece. I'm very interested in the concept of sports correlation and if there's any websites you'd advise looking at or advice when looking to help increase knowledge/awareness here. I'm in Cheshire (UK). At present I'm having neuro physiotherapy - just learning to walking, stand and sit properly. It's driving me mad because I've always been fit and played sport etc. from being a kid (rugby, athletics, military, police). Thanks. Dave.

[DNE92 Moderator FND Hope UK]

Hi

I do long distance road running - 10kms, 1/2 marathons and 1 marathon. Hope to extend the marathon total and ultimately do some ultra marathons. I have just this evening entered my first road race (10km on 3rd Dec). I haven't raced since my seziures started. I still get them daily but am determined to still see myself as a runner (although my former club wasn't interested in having me as soon as my seizures started). So I train myself and it has been on a treadmill at the local gym. Here's hoping that my brain doesn't just decide to face plant me on the ground before I finish; afterwards not fussed. I just keep getting back up and stick on another plaster or dozen.

Cheers

Lou