I understand that today starts the FND.hope annual awareness activities with some teleconference sessions involving experts from around the world.
I give thanks to FND.hope for their efforts.
I further understand they may be including some of the anonymous questions that were submitted by this community for delivery to the Emory conference on FND that took place March 3-4 of this year.
I give thanks to you all for preparing those questions and for allowing me to play delivery boy and take them to conference.
Mostly, I give thanks to you individually today.
You have enriched my life and given support to my family.
I can not figure out how to ever repay your goodness.
So, I just give thanks for you. A true blessing in my life.
I hope some answers are revealed this week. I hope some suffering is diminished and renewal is restored.
Dan, we love you so much for all your true friendships, support, and heartfelt efforts. May I also say that you are one of the best writers I have ever read. I feel like I dance when I read your word of struggle and love
Your kindness peers into the soul and soothes a broken heart. I want the best for you and this community. Such effort to find truth will yield answers.
I have to rest now. The heart insists. Be good out there. Stay alive. This world needs you.
Thank you Dan for all that you do for us , sorry I haven't been on for awhile been a bit to unwell and it has been so draining not only on my body but also mentally .. Anyway just wanted to say go get them Hun if anyone can speek out about our bs condition it's you
Think about you often. I thank you for writing. Sounds like it is a tough time for you. I hope for you to be better. Will take 'em to task best I can. Think maybe the vampire got the best end of the deal last night. Talk soon.
That's easy Dan. The best thing you can do to repay us is what we can all do. Keep supporting each other in whatever way we can. Keep sharing information, keep advocating for each other, keep caring about each other. We need you just as much as you need us in order to fight the good fight.
You make it OK. Thank you. Will update on daughter condition as I can. Back home now from doctor. Extensive labs underway. Closely watching immune function and breathing. Have emergency options in case goes wrong again. Vasculitis under investigation. Will keep trying Margaret. Will report back on this and other findings related to low BP as they develop.
Please don't worry about us when you have other important things to deal with. Your priority is yourself and your family. (Sorry, didn't mean that to sound quite so bossy so I retyped it with a please in front!)
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Fed up with the BS doctors give you
Stay Positive, Keep moving, and don't give up, there is life in being diagnosed with FND.
Just want to give up
