" I've got sunshine on a cloudy day..." - Functional Neurol...

Functional Neurological Disorder - FND Hope

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" I've got sunshine on a cloudy day..."

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Lyrics from the song "My Girl" recorded by The Temptations (1964) USA

My community friends.

A dedication to englishmumof2 for all of her courage to stay in the game and to consider the resources to help her see it through. I give great thanks for the outpouring of support in this community to be there for her.

We care about you, englishmumof2... Always!

My tiny struggle with a misbehavin' heart continues. I still stand with all of you. We keep trying together.

I did manage one thing today. I joined the Meetup.com site and then joined a group on that site known as "Seattle Health Innovators."

I sent a message to an event coordinator for that group identifying myself as a patient of unexplained symptoms and briefly describing why this diagnosis might be a topic for a future Meetup event.

The group collaborates on ways to help medicine move forward in various areas to improve healthcare. I have offered to make a presentation on how this diagnosis makes an impairment on our lives and that of families and causes us to slip through the cracks untreated and be left on our own to cope.

The person I sent the message to had expressed an interest in her profile in medicine being supported by science and fact.

We all know how we feel about the importance of that statement.

Difficult to write today. Hope this made sense.

Love to you all. Keep trying.

Dan / Seattle

3 Replies

Good luck, sounds like a great idea. Hope your improving a bit.

englishmumof2 profile image
englishmumof2

Thank you Dan... thank goodness I have this forum because I'm not sure how much I'd have been able to hold my self together... today is pay back for working too hard yesterday... headaches feeling sick... and kids finish lunch time today 🙃. But still have more work to do... on the plus side vacation tomorrow for a week so I won't be sitting in the house stressing about it...

in reply toenglishmumof2

englishmumof2

Thanks is given to you. Wind down. Enjoy vacation. Don't rule the world. Let someone else do it.

With happy thoughts for you and family.

Dan / Seattle

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