Thank you : Thank you very much guys... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Thank you

englishmumof2 profile image
10 Replies

Thank you very much guys... I couldn't have got through these last few hours without your lovely practice advise and listening ears (eyes) Your caring words and support! I'm Hoping to see my gp tomorrow see if they can help! Car is full of stuff! I'm now sitting in sofa trying to relax sending you all good thoughts and here's to a restful rest of the week 😍

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englishmumof2 profile image
englishmumof2
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10 Replies
kjkla85 profile image
kjkla85

I really hope the GP offers some more help for you. Look after yourself x

englishmumof2 profile image
englishmumof2 in reply tokjkla85

I'm guilty.... I didn't go... I did a couple of dump runs and cleared out the greenhouse and shed... walked dog... and moved all bed furniture to clean skirting boards etc... so just carpet to clean in my room.... yes I know I've not quite got pacing down .. I will pay for it ... I can feel my left shoulder starting to shoot pain and the electric shocks in my feet ... but I've achieved a lot today.... mmm not sure if I'll make it out of bed tomorrow.... 😱. I did talk to my dog walking group.. one of them had a Similar situation and they couldn't face talking about it so they write a letter... she was really depressed and knew she'd fall apart if she spoke about it . So maybe I'll do that as writing it down is easier than saying it ! Plus it gives me a chance to put down everything that's going on!

in reply toenglishmumof2

When I started to have symptoms I was still recovering from injuries so it was hard to tell as I kept blaming it on 'something they were missing' but now have that great diagnosis of FND. But then I was still able to get out and about but was in a lot of pain. Now it's pain and weakness. I think about the way we were brought up - never to have sick days, having a sleep in was just lazy, and in my house cleaning was like a religion so when I first moved out I was probably the cleanest most industrious student ever. I think that sticks in my head, I feel guilty if I have an afternoon nap, or by now haven't cleaned in 4 weeks, last time I blacked out, but I'm really neat and live alone, so the place is just really dusty but I'm trying to let go of those feelings of guilt of not feeling guilty about getting a cleaner in and I'm going to try drawing again. I joked that I was going to draw those big black scribbly holes you see in horror movies to reflect my frustration, but il try something a bit nicer.

englishmumof2 profile image
englishmumof2 in reply to

I have 2 boys and a dog .. the mess is daily I even have my own carpet cleaner so I can clean carpets weekly!!

in reply toenglishmumof2

I have 2 cats. I don't know how it's possible for them to shed so much and not be bald. There's a funny website for pet people icanhascheezburger.com with funny pics and comments, a lot end up on Facebook. I sometimes go on just to have a laugh. but there was once a collection of people who had knitted jumpers out of their pets fur then took photographs beside their pets with their jumpers on. Freaky but true. I reckon I could knit for a whole community if my hands worked 😊

englishmumof2 profile image
englishmumof2 in reply to

Omg ... a dog walker I met had 15 huskies and she sewed the dropped hair in to little dog ornaments 🤣

in reply toenglishmumof2

And they say people with FND have psychological issues 😆

englishmumof2 profile image
englishmumof2 in reply to

Ha ha ha too funny 😍

nurmihusa profile image
nurmihusa in reply toenglishmumof2

Absolutely write it down. And take your time to do it thoroughly and at your own pace.

englishmumof2 profile image
englishmumof2 in reply tonurmihusa

Thank you... Have a lovely weekend xx

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