Housing problems with FMD

Hi to you all!

Have any of you with FMD who maybe living in a flat tried to get a Bungalow

on health grounds?

We've tried everything, had my medical priority highered, Neurologist and GP letters sent off and even appealed twice with help from my local MP but all to

no avail.

I find the noise that we put up with,

even neighbours closing windows,

can trigger my symptoms off.

A Bungalow would give me a sense of

peace and quiet that I need because I could sit out in a garden which I find

therapeutic.

Has anyone tried getting one from

their local housing association?

It's terribly frustrating.

Sorry to go on.

Thank you everyone.

Best Wishes

Kim xx

15 Replies

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  • SAME AS YOU. I AM LIVING IN RENTED PROPERTY AT PRESENT, BECAUSE THE COUNCIL WILL NOT HOUSE ME AND MY HUBBIE. HAVE NON EPILEPTIC FUNCTIONAL DISSORDER, ITS GETTING TO THE POINT WHERE I WILL EXPLODE!!!! THEN WHAT ARE THEY GOING TO DO????

  • Hi there!

    Feel so sorry for you both.

    Have you appealed or had medical letters sent to

    your Housing?

    I really wish you both

    all the very best.

    All these stupid rules really

    get me frustrated.

    Kind regards.

    Kim xx

  • Nit good it took me two years to get housed after a mini stroke I lived over three floors and was stuck upstairs for up to four weeks at a time , finally I got a bungalow which was great news , my health professionals, existing housing officer etc worked hard and finally got it , so keep going , I also got my local mp involved so try that too

  • Hi there!

    Tried all you've said.

    Appealed twice.

    Had Neurologist letters sent.

    What next!

    Thank you.

    Kim x

  • Are u on all home swapper sites x

  • We're on the bidding system which is a joke.

    Bidded for places we should of got but didn't.

    Priorities for homeless and domestic abuse sometimes play

    a part.

    Financial funding for Bungalows isn't good.

    Xx

  • THANK YOU FOR REPLYING TO ME, GUESSI HAVE TO TRY HARDER, BUT AM 50 AND DONT KNOW IF I CAN GO ON...

  • Have you had any success? Visualize it happening, even if it hasn't yet. Don't give up.

    Johanna

  • Nit sure what the rules are with council re non epileptic or fnd tbh , I was in a refuge and that's how I ended up in council , but that took two years and then I fell completely poorly stroke m bowel , fnd, nead then that took a further two years to get me to the bungalow I dreamed off , however u must persist as nothing comes to u easy good luck

  • THANK YOU SO MUCH FOR REPLYING TO ME

    I AM STILL RENTING, BUT DONT THINK I HAVE A HOPE IN HELL OF GETTING A COUNCIL PLACE, I ONLY WANT A SMALL PLACE JUST FOR ME AND HUBBIE, I HAVE FOUGHT SO HARD TO BE DIAGNOSED , NOW I HAVE A BRILLIENT GP, AND NEUROLOGIST AND AM UNDER THE MENTAL HEALTH TEAM IN MY AREA, AS I AM CONSIDERED VONERABLE, I KNOW I HAVENT FOUGHT HARD ENOUGH, BUT TO TELL YOU THE TRUTH, I DONT KNOW HOW LONGER I CAN FIGHT, AS I AM NOW FIFTY AND FEEL WORN OUT, PERHAPS YOU CAN HELP WITH ANY TIPS ETC AS TO HOW TO APPROACH MAY LOCAL COUNCIL? I NOW LIVE IN CANERBURY, HAVE BEEN HERE 2 YEARS,

    MANY HELP YOU CAN GIVE WOULD BE VERY MUCH APPRECIATED

    REGARDS

    LILLYX

  • I would contact the council direct and get mental health to write for u and your gp and register on the council list if u are not a,ready in it , u need to be registered and u can do this online. I have a Facebook therapy page may help u it's Clare Campbell therapy support group

    Take care and dint get stressed x

  • THANKS SO MUCH, YOU HAVE BEEN A GREAT HELP, STAY SAFE, LILLYX

  • You're welcome.

    Anytime Lilly.

    Hope you get all the help you need.

    Best Wishes

    Kim & Tony

    Xx

  • Hi Lilly!

    I'm so sorry to hear of your struggles in

    trying to get property for yourselves.

    Have you tried getting Social Services

    on board to help you both?

    You could also ask your GP to assist you in dealing with the Council.

    You're entitled to help.

    Maybe you could also request letters from your Neurologist and Mental Health team.

    See if your local MP has a clinic where you can visit for an interview.

    He will have staff who will write down all your issues and they will send him all the relevant information.

    It's annoying because the system doesn't make it easy for people.

    Keep on trying although I do appreciate how frustrating it is for you both.

    You could also try contacting

    your local Citizens Advice Bureau.

    Please let me know how you go on.

    Best Wishes Lilly to you both.

    Kim & Tonyxx

  • I don't have any suggestions to help you because I live in the US, but I can relate to the noise factor. I have struggled my entire life to understand my sensitivity when it seems like others have no problem with living in a society that seems to require an excessive level of noise at all times. I have read about"The Highly Sensitive Individual." I know that I am such a person. I believe this maybe a precipitating factor in the onset of this disorder. The inability to tolerate, process too much incoming; which includes bright lights, noise levels, chemicals/neuro-toxins, vaccines, flu shots, and all that everyone is now being so readily exposed to in our daily lives. As a holistically trained health practitioner, my training and research has resulted in finding documentation to support this way of thinking.

    I accept my sensitivities, even though it has made life more challenging. Education of the public, medical community is important as well as for others. The individuals who are seemingly unaware of the effects of what all now live with, are of concern to me. Although they may not be aware of the effects/stress on their bodies, it is still have an impact.

    Thank you for the opportunity to present this information.

    Positive energy to all.

    Johanna

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