Has anyone tried these patches??? My doctor put me on them yesterday to try & help the pain, but as of now I still have not received any relief yet. Has anyone else tried these & they worked??? I am getting at my breaking point & dont know what to do...any help is recommended...
thanx in advance
TaZMommy
I was reading the instructions that came with my Norspan pain patches and it says that it can take 24-48 hours for the patches to work.
I find that if i take Panadeine (Panadol/tylenol + codeine) anything up to 12 hours or more before applying a pain patch, I end up throwing up as I get overloaded. I haven't tried taking Panadeine after removing a pain patch.
I have found the best place to apply them is on my stomach or outer arm. Otherwise they end up crinkling around the edges and my shower water seeps in, giving me a fungal infection ...on top of the minor allergic reaction I get to the tape around the edges of the tape. The drier they stay, the less inflammation I get.
Fortunately I've been able to figure out for myself both what sorts of movements set mine off, and miracle of all miracles, I have found a weird way of fixing the problem myself, so i've only had to apply 3 patches so far this year! Yay!!! I put up with that pain for 4 or 5 years. Thankfully no more of the searing pain...just nagging pain that I can cope with now.
I hope you have found some relief by now, and haven't been pacing the floor too much in the middle of the nights, like I have in the past.
Be well...or as well as you can be given the situation...
Thanx VivienneWaterworth, I've been on this patch since Friday & still hasnt done alot yet. The only time I notice is it's a little easier to get out of bed in the morning. I am still trying hadn't given up yet!!! Thanx for your information it has helped me alot.
Thanx again
I don't think anything really gets rid of the pain. Some meds make you less aware of it but it's always there.
My pain was made worse by the spasms that it set off, so it became a vicious circle where they both made each other worse. My doctor decided to treat me for 'Nerve Entrapment' using a low dose anti-epilepsy medication, Epilim. 200-600mg a day, where the normal dose for epileptics is 1200-2400mg a day. I find it very useful for breaking that vicious circle, and allowing the muscles to not spasm so much, and therefore not create so much pain and not pull so hard on other parts of my body.
My problem is that spasms in my shoulder would make it unhitch from my neck, dropping it down an inch or more (never seen before by either my teacher/doctor or my orthopaedic surgeon at a large teaching hospital), and that would force my rib cage down, dislocating ribs front and back, and also pinch a ligament/tendon? between my right hip and the bottom of my rib cage, right out at the right edge of my body. So I would end up with multiple sites of extreme pain, and breathing, sitting or lying down were extremely painful. Two years ago I eventually figured out what the simple action that allowed this to occur was (simply tilting my head over to the other side!!!), and this year I accidentally discovered how to fix the problem one night while trying to scratchin an itch in a very difficult to reach spot behind my shoulder. Yay!
The other thing that really helped all this was to massively increase my magnesium intake. According to my doctor, the more muscles are used, the exponentially more magnesium they use. According to the internet, up to 1 in 3 people suffer from a severe magnesium deficiency and don't now it. Deficiency causes significant muscle pain, weakness and spasms, and also significant nerve problems. I take between 3 and 8 huge tablets a day, depending on how many FND seizures I have.
Another thing that really helps with nerve issues is to take Vitamin B12 tablets or get injections. Many FND sufferers have reported SIGNIFICANT benefit (like night and day!) after starting B12 injections...after having a blood test that showed their levels were in the lower half of the normal range...and often only just below the middle of the normal range.
A 4th thing that helps with FND is that many people have reported a significant improvement after going gluten free in their diet. This can be a very difficult thing for some people to do because you have to read the fine print on all processed food labels. I react very strongly to the amount of gluten in frozen chips from the supermarket, and takeaway chips from most takeaway shops. (sugar from wheat, or maltodextrin from wheat). There is a lot of information out there about Gluten Ataxia and what it does to the brain. This is a far far worse condition than simple Celiac Disease.
You can check if you have this by going gluten free for a week (follow instructions freely available out on the internet), then re-introduce gluten and see how you react. A week without it is all it takes to show you whether or not this is a problem for you.
I hope this helps you and/or anyone else reading this thread.
Yes! Give it some time . I can tell if I accidentally forget the day and time (when first started using ) . I now have set alarm on my I-phone to remind me ( for me it is every Thurs at 11:30. I also use Salonpas pain patches for trigger points on legs and butt area., sometimes on sides. I like the small ones that come in green boxes. They have larger sizes which I use when sciatic is acting up.
Hang in there , you are on the right track .
I just got mine about 2 weeks ago, I'm on patch number 2 and start my other patch on Monday, I'm on 10 mg and have degenerative arthritis of the spine and congenital glaucoma plus trauma induced glaucoma, and I will say the patch works great for me, it helped getting a new pillow, I will say it seems it works better on my back instead of my shoulder.
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