My name is Sandy and 9 years ago I started some type of movement disorder. Al neurological tests came back fine was told it was in my head, accused of many things such as faking and selling meds. Told me that I was addicted to what they prescribed, so I got myself off most everything. I was seen by many psychiatrist and psychologists and told that this appeared to be a Neurological problem and all the Neurologists here in Maine said it was conversions disorder. Finally I requested to see the movement disorder clinic at Mass General and started to see a few different dr's there and was told it could take quite some time to figure what I have since all testing has been normal. Upon research on my end and presenting it to my primary neurologist and her colleague, they both agreed that this is more than likely what I have. I am still supposed to continue care with them as they have me on Tegatrol and Klonapin. This was only a month ago. I would like to be seen here because their suggestion to me when I have any of my very painful symptoms (which is each and everyone listed) is to just ride it out while my body turns itself into impossible positions an I have non epileptic seizures daily. I just need help to get my physical life back as my mind wants to get it back in the worst way. I am only 43 and have been severely afflicted for 9 years.
Last edited by sandygagnon
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