Hi, my name is amelia. 33 and just diagnosed with FND. had it for 4 months. I had something similar 4 years ago for about 8 months but with no involentry movement. at that time MS was ruled out in my brain scan. and Lyme disease was ruled out. I am really ill, fizzy limbs, involentry movement and spasm fits ( thats what i call them) pain, fatigue, stutter and word finding probllems and weakness. Really struggling. Had to resign from work. I am waiting to try physio therapy. I need a stick to walk and can't go far, the more i do the worse the involentary movement gets. Today i went to see the GP and begged for anything to just give me a break from the symptoms. Because I had a recent EEG and it was normal neurology referred me back to the GP saying it was a functional disorder ( which i had to google and found FNDHOPE.ORG, thankfully) and the GP can't prescribe anything for the twitching/spasm fits because the electrical activity in the brain is normal. I cried today. GP was so good but his hands are tied. My hubby asked if he could sedate me to ease things. He prescribed co codamol to see if it helps the pain on painful days and to see if it helps anything else, but he really didn't know if it would. It hasn't helped the twitching at all, the fizzing does feel less intesne but it might have eased off, but cognatively my head feels all dopey and I don't like it. So i think it will just be for pain days. I have had to apply for accesability housing because I stairs are such a challenge as is the bath and shower. I tried to get a wheel chair so i can go on days out, neurology advised against this. basicly from working and enjoying a life with a young family to being almost house bound and needing help to chop vegetables and needing to rest after brushing my teeth. Its been an awful experience. Most days i try and have a good attitude but i felt so desperate today. I even sought out an chinese medicine/accupuncture clinic and he didn't want to start a course of treatment because he did not know what he was aiming at. .....Sigh. Anyway, Hi and hello to all.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.