So diagnosed with fybromyalgia doctors didn't explain what now

[CharleyDale]

So I'm diagnosed with fybromyalgia what now doctors didn't explain

[rosehip]

i have to see my gp once a month to chat and see how meds are working . when i was diagnosed my gp had me and my hubby in to chat about fibro she was brilliant . have you been diagnosed by your gp xx

[CharleyDale in reply to rosehip]

Yes gp diagnosed just said acupuncture which I can't afford and to buy a tens machine and see him in a month to see how meds are working but didn't explain anything

[Hidden]

ok dont panic .. and welcome

ITS not in your head .. you will find people who dont get it and even doctors are hit and miss...

most people find FMS is controlable with meds but its finding the right ones for you in many ways .. lots of people on this sight are fabulous and your welcome to ask what ever .. some people have different symptoms to others so always go back to your Gp make your self a pest and an expert cose in a lot of ways you need to be..

read up on line the sight i think we recomend is ...

nhs.uk/Conditions/Fibromyal....

or

fibromyalgia-associationuk.org

I know other vols are really hot on web sights ( im not that good )

the lady who was brave enough to speak looks a bit grim but there are wonderful ladys and gentlemen on here who look fab .. ( sorry if you know the lady)

dont buy anything yet ... you can borrow a tens matchine from the Nhs and lots of other help is available to try including Physotherapy threw the Gp

remember fms will not kill you good luck xxx

gentle dyslexic hugs

[Hidden]

Hello and welcome Charley!

You will find a mountain of information on our main website, here is the link -

fibroaction.org/Pages/About...

It takes a bit of getting used to Charley, so don't be too hard on yourself. If you are able to join a local Fibromyalgia Support Group these are always a good idea. You can have a chat and a drink with other Fibro sufferers. It's quite therapeutic comparing notes etc.

You will find our lovely forum helpful too. We are all in the same boat and more importantly we all understand and are here to help and support each other. So anything you are unsure of, or if you just need a good moan or to discuss anything that worries you etc., please feel free to air it here. We are always happy to help and try to point you in the right direction.

It all feels a bit of a minefield at the beginning, but you will get used to it and adapt your life round it. It helps knowing you aren't alone.

I presume you have a Consultant who possibly diagnosed you. Sometimes they have leaflets explaining Fibromyalgia, Arthritis etc.

Have you been given any medications to help with your pain and fatigue? You eventually will be able to manage your pain effectively and hopefully control your sleep and rest periods.

Wishing you all the best, take care.

[emadavies]

i had same problem, been diagnosed nearly a year now an never see the rhumatologist since, so been left having to go to gp, occationally, theres no propper monitoring! altho have started accupuncture last week

[Hidden]

You can normally get to see your Rheumatologist again should you need to do so. I have an open ended arrangement with mine and all I have to do is to phone the Consultant's secretary and make an appointment for a review. It might be worth a try Ema. My GP sees to my repeat prescriptions when I need them.

[rosehip]

dont foget you want plenty of rest and when you do anything do it with pacing yourself xxx

[pennells]

hi and welcome, sorry you feel in the lurch, its very hard at first, coming to terms with the fact that you will have this problem for the rest of your life unless they come up with a cure, i am under the doctor, have been for 2 years now and she has not mentioned the hospital at all to me, i am thinking of seeing another doctor to see if i can be referred, today i have had a bad day, i have been stuck in the house all week as hubby needs car, and i am trying to work out what i can do in the future, if i am going to be able to get back to work, it has become a very lonely life as riends dont ask me round any more as they feel i cant make it through the front door, i wish they would all take the time and read up on it all, i wish you luck , sue xx take care

[emadavies]

my rhumatologist was a long way away! had my dad to drive me there! is it worth asking to see 1 nearer to me even tho the waiting time is 22 months

i just feel like they keep palming me off with the same meds that have diff names an none work!

iv told them i feel better when i get good sleep, which i rarely get so oasked for sleeping tablets but aparently my pain meds are ment to knock me out but dont!

[CharleyDale]

Oh guys your all so friendly it is confusing all I have seen is doctor and had bloods eventually he diagnosed me been told to get on with it Basicly and he did annoy me I was told to stroke my most painfull tricot points and tell my self they don't hurt a brush against them makes me squeal so don't think I'll be able to stroke them I'm a single parent and they know I can't afford acupuncture, I thought I would get an explanation or a where to go from here but in the dark so I am pleased I found this site I have been given amtrip paracetamol codeine tramadol and movolat cream not found any work but do agree a good night sleep really helps I hadn't really accepted it and realised after taking my gran to Blenheim palace for the day that I might just be ill I was knocked out for three days straight and took a while to get back to being me with a low 4/10 pain which I call an almost pain free day, does anyone know why we have this and what help we should seek xx

[emadavies]

im lucky i got acupunture on nhs! only just started so not sure if its working yet!

never heard of movolat cream, but as far as i understand it, its a brain problem, so dont get why docters throw meds at us that are ment to stop real pain not stupid brain fake pain!

[CharleyDale]

It's weird so why do our brains do this can we teach our brains not too maybe I hope we can but then is it real cause I know it feels real and I can be whacked for days yet I used to be so fit and healthy

[nanny4 in reply to CharleyDale]

I had accupuncture on the nhs also,had it at my local physio,then at the pain clinic at the local hospital pain clinic.you can hire tens machines,I bought one from Lloyds chemist for £15,I do find it helps,it takes the edge off of the pain,works for my headaches,neck pain ,hip pain.

I take co codamol,amitrypyiline and pregablin ,also diclofenic/anti inflammatory.

My doc told me nothing ,that's why this site is great, hope you get some answers real soon,take care Sandy.

[emadavies]

drives my crazy when people say u cant be hurting u havnt hurt yourself! its like how many times do i have to explain it! i have to make it super simple for people to understand, so call it fake pain that hurts like hell, lol

[gregorysgal]

just waiting for results of blood test dr ordrered , he thinks i may have fibro , along with athritis and underactive thyroied and epilepsy , i have been diagnosed with athritis 3 years and still not seen a rhuematlologist yet nor an endo crinologist for the thyroid .......fed up