I would like to know if anyone with F... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I would like to know if anyone with Fibromyalgia lives in Leicester? Is there any specialist support here or anything that can help me?

juliettesmile profile image
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juliettesmile
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6 Replies
loobie profile image
loobie

Hi hun I live in leicester I don't speak often but my phone is always on so I can get my emails & face book notifications I'm here if u want 2 talk hun x Gentle hugs & big :) 2 every 1 x

flange1967 profile image
flange1967

Hi Juliette I live on the outskirts of Leicester in Wigston I'm so happy that I'm not alone. I'm on a bad time at the mo and I don't have internet at the mo but I have emails through my phone and I'm able to reply on this site. If you would like to keep in contact or meet up let me know x it would be nice to speak to someone who is going through the same as me x ((gentle hugs)) xx Angie x

juliettesmile profile image
juliettesmile

Hi, I live in the city centre, managing to hold down a full time teaching job and would not be able to cope without my partner, he is very supportive, I've only been diagnosed for about a year but obviously I realise this is long term so trying to accept what I've got but know I now have to learn to self manage this. I was on tramadol and amytriptylene but I gave it up as I got fed up with it. So obviously still in a lot of pain but trying to find a different way of coping . All everyone talks about on fibro forums Is all the medication they're on, not really seen anything about people trying to deal with it through healthy food, lifestyle changes etc... Sorry I'm terribly boring after a day at school! What's your story?

retiredpharm profile image
retiredpharm

I live near Leicester. At the moment I am going through the final diagnosis stages for prostrate cancer - hopefully not serious. I understood there was a group which met up regularly in the city and I remember whenI went to the pain clinic at the L.R.I.(Dr Collis) there were quite a lot of other patients around with fibro.

sadoldred profile image
sadoldred

Hi Julie. I am new to this site so please be patient with me! I am from the Coalville area, and have been trying to find a group I can get in touch with? I have been in touch with the Ashby Me and Fibromyalgia group. But due to illness they havent set a meeting date! But once I find out I will post it on here! I have today been to the LRI to see consultant in Pain Clinic, there I asked for a Vit D test to find what my levels are like? I was told I cannot have this test done there, I have to ask my own GP. Also my Gp sent me there as to get a letter from them to do for my DLA appeal also my ESA, but again when I asked was told to see my own GP! I have been fighting the Benefits system now for 3years. Feeling so poorly most of the time just makes me wonder if I have the energy to fight this anymore!! Family have told me I must keep fighting to help make my life a better place to be! :(

Kittiekat profile image
Kittiekat

Hello. I'm in Leicester if any of you see this post. I know your post was a long time ago xx

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