Diagnosis by GP: hi everyone I... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Diagnosis by GP

hi everyone

I hope that everyone is coping with this heat I'm (I'm not it's awful). Spoke with my new GP yesterday. I had sent a letter before my appointment detailing the problems that I have been having over the past few years . I also sent a fribro diagnostic questionnaire I found in here from the royal institute of physicians. I completed the form which btw showed that had Fibro. My gp was happy diagnose Fibro from all the info I had sent in . And I've now been referred to a pain management .service ......seemed to easy to me but at least they listened . We will see what happens next.

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Mrdiagnosis

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11 Replies

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glochessum3 years ago

Good luck and welcome to the family. Hopefully they can find something that works for you.

aoifectcp3 years ago

Years ago, I did a similar thing. I listed what was happening. I have an original issue with trigeminal neuralgia, chronic migraines and familial hemiplegic migraines, hypothyroid, pcos, severe vitd deficiency blah blah blah the list goes on. It got to the stage everything was blamed on the genetic fhm (familial hemiplegic migraines) but I felt that was wrong. I spent years researching online and talking to numerous other people with same conditions. Then I got the dreaded burning sensations all over my skin. Couldn't bear things touching certain areas. I'd already been diagnosed with raynaurds so wasn't that. I was at my wits end. I sat one night started at my head and listed everything, down to the most minor of ailments. Felt like a whiney little b@tch but as I said I was at my wits end. Made the appointment and went to see my favourite doctor. Handed him the printed the sheet and asked him to look at it with a fresh perspective. Thankfully.. he did. He reclassified on his system that day with a diagnosis of fibro and removed some medication from my script and put me on duloxetine low dose. After about 2 weeks I woke up and stretched like most normal human beings. Honest to god miracle for me. No miracle drug, but I have a little more mobility and at least now all the GPS in the practice don't just dismiss everything as my migraines. Only downside is they sometimes try to dismiss everything now as fibro. I will never let another doctor do that. I insist on a full explanation as to their thinking. My favourite gp once told me that it's called a gp PRACTICE for a reason. They are far from specialists and should never be thought if as the last and final word. Glad you got your diagnosis. Pain management are great people. Their advice in invaluable. Let us all know how it goes. 💜🦋

Hazel_AngelstarAdministratorFMA UK Staff3 years ago

Can I just check that your gp has also done any relevant tests to rule out other potential causes of your symptoms, as your post reads as if the gp has based diagnosis only on your information

Mrdiagnosis• in reply toHazel_Angelstar3 years ago

Why would you need to check ? Instead of reading one post and assuming the negative, might I suggest you read my previous posts.

If you are a sufferer of Fibro you would know how hard a diagnosis is to get so thank you for your input however it was meant .

desquinnPartnerVolunteerFMAUK Trustee• in reply toMrdiagnosis3 years ago

when being indignant it is always best to know who you are speaking to. Assuming the person may not have fibro instead of reading their previous posts is a bit hypocritical given your comment.

You would also have found that the person you are speaking to is a moderator and also an employee of the charity. And if you checked the rules you would know this is a support group and if you had an issue then report it rather than offering a rude reply.

Hazel_Angelstar 's reply is reasonable and I would have said the same as there are a number of differentials and it is a reasonable question. So rather than biting back either ignore, report or take the question as it was intended.

It was a reasonable and polite offer of a perspective.

Mrdiagnosis• in reply todesquinn3 years ago

And there we go . Someone else puts thier 10 pence in that wasn't required.

Mrdiagnosis• in reply toMrdiagnosis3 years ago

Plus Sir , a moderator should be more aware that there are often hidden factors for someone negative response . Which from the lady's response to me (if you read it ) was enough to show that she indeed cared and didn't warrant your input !

desquinnPartnerVolunteerFMAUK Trustee• in reply toMrdiagnosis3 years ago

there are factors behind every response and this is a support group but I do not like people suggesting others do not have fibro. I also posted before hazels or at the same time or else I would have left her response as being sufficient as I would not seek to undermine her.

But still my response is there and stands. I had thought that you are coming from a place of pain and your caustic response was perhaps due to this. But as the lead for this moderator team I will always take it personally when people are being unreasonable to the team.

Also when anyone posts on here then that's it. They cannot control the responses that come in. But they can control their reactions and they can either ignore, report or respond in a reasonable way.

And rather that guessing whether someone has read your previous posts, or whether I have read all the posts on this thread prior to responding or done any other due diligence. Maybe, presume the best rather than suspect the worst.......

Mrdiagnosis• in reply todesquinn3 years ago

Attacking someone is bullying and I feel like you are attacking me .

Can't just leave it alone .

I responded to the moderator and as far as I'm concerned that's enough .

If this is the way you treat people whose opinion or responses then maybe it's not such a support group more of a do as we say group , freedom of speech is not dead and I wont be spoken to how you are .

You made your point in your 1st response.

So either ignore or report my reply because a response is not warranted or required .

Hazel_AngelstarAdministratorFMA UK Staff3 years ago

I was only asking to check - just in case, tests had not been done. Yes, I have suffered personally for 28 years now and volunteered/worked for FMA UK for 10+ years, however, in that time we have heard many stories at the charity of people who have been mis-diagnosed with fibromyalgia - purely because a doctor made a diagnosis based on symptoms list only and did not explore further /other potential causes. I totally appreciate how hard a diagnosis is to get (my own took me 12 difficult years)

Mrdiagnosis• in reply toHazel_Angelstar3 years ago

Thank you for your reply . And if I upset you In anyway then I apologize. I also suffer from PTSD and part of that is not having the ability sometimes to recognise help rather than criticism.

Regardless of the fact that you are a moderator people also need to accept that not everyone has the ability or mental capacity to trawl thru lots to past history.