HELP is what we need, not supression.

[does-the-NHS-work]

Hiding information or not discussing information that can help us all is crazy, “Whether something is available or not available on the NHS is in material. it is correct to highlight the importance for individuals on this forum and for us all to understand what help is available for certain symptoms. Individuals they may be fortunate enough to pay for their care or find other options.

It is my opinion, what we do wrong in the UK is look at Fibro as an umbrella As “If there is no evidence for fibromyalgia forget it” just keep taking your antidepressants.

Evidence is obtained by asking the question, forums like this are a voice to understand the condition and its symptoms, you won’t get the feedback the members deserve if you write everything off with “there is no evidence for fibro”.

The reason why there is little of no evidence is that we do not have the money to throw at fibro, little or no trials, research or investigation again down to money and we are not dying from it in our thousands.

This is highlighted with the recent epidemic, if thousands of us start dying of fibro the government will throw millions in funding to find a cure or at the very least some effective medication. Just as it did with COVID and hey presto we find a vaccine, that was because we threw millions of pounds at it.

But this condition is complex, evidence suggest that treatment for individual symptoms must be looked at and cared by other health care professionals. This is written in the NHS guideline for diagnosis. Fibro is a combination of factors that reveal symptoms under the overall heading of fibromyalgia.

I read on this forum simple question relating to fibromyalgia that should clearly be discussed and delt with at diagnosis, I feel the pain of these individuals struggling to make sense, shattered with nowhere to turn to, yes, this forum is great to answer these questions and support each other. It could also work with some of the evidence, reviews and feedback on specific drugs and treatment collated and sent to the NHS to substantiate proven success.

Some of the people on this site are at the end of their tether, just like I have been over the years, they need answers and hope.

It is not right to defend an organisation just based on its inabilities of management or that it is better than other countries or that it is due to lack of staff, neither is it beneficial to bring up a formal complaint to the NHS and waste more funds. The NHS is doing its best, I am not here to poke fun!. What is needed is group support, group acknowledgement with circumstantial evidence within a group to bring about substantial changes for the benefit of us all.

What individuals need to know is the truth, that their symptoms can be assessed and treated by other departments in the NHS or other providers other than rheumatology. Evidence proves this.

Making remarks to suggest that “No evidence, No trials, to show it will help fibromyalgia” is frankly bonkers as it can stop us vulnerable people trying things for ourselves, what we need is hope not discouragement.

I am not here to preach to anybody, but I do feel it important to highlight the facts for each individual symptom. Whilst the NHS does a Job, individuals in the early phases of this condition need to understand there are areas of their symptoms that can be looked at independently.

"desquinn" If you are not happy with me sharing my views and findings just say that. Sorry about my grammar and spelling I am a bit dyslexic too.😏