Bad pain lack of sleep medicine

[bigpigs77]

My pain is all other my body my legs burning sensation.my hands tingling pain hip pain neck pain my arms go numb back pain.sweating at night and day and itchy skin.i have had a enough pain killers and lack of sleep some days I feel like killing myself but that would not be good for my family and friends that love me.i am going to ask my doctor about the pain clinic to see if they can help me or if I need to change my medication.

[uggycat]

Hi Big that is absoulutly awful it is hard to understand unless you have been there . I have and am still going through some of the awful things you describe. So you are not alone l hope you get the help you need. When i have been really bad i have had ambulances out and and have gone to A and E. I always felt guilty but did get some good advice, which i would not have known about. I am thinking of you

[bigpigs77 in reply to uggycat]

Thanks you for your reply and advice. Hope can find something that works for you and thank you for your nice thoughts.x

[Hazel_Angelstar Administrator FMA UK Staff]

Sorry you are struggling so much. A request for referral to pain clinic sounds a good idea

[bigpigs77 in reply to Hazel_Angelstar]

Thanks you for your reply 😃

[LoneEra]

Oh, this sounds horrible. And I can relate. Been crying a lot about the pain and fatigue recently myself.

Definitely speak to your GP and take whatever is on offer - new meds, physio referral, pain clinic referral etc.

If you don’t already have a TENS machine you could try getting a cheap one. It doesn’t make the pain go away as such but it gives a different sensation to think about, which is sometimes enough to give a little relief.

Sending you positive thoughts x

[bigpigs77 in reply to LoneEra]

Thanks for your reply and advice I will try the tens machine.

[Disturbed47]

Bigpigs77 hope you get more luck at your pain clinic appt cos mine was a waste of time. I got referred a few years ago cos a Dr I saw at pain clinic (not my GP) said I didn't have Fibro cos Fibro doesn't exist (which I could go back & see him to say 'oh really, do you wanna change your mind') & he basically said it was 'in my head, generalised pain all over). He then referred me for CBT (Cognitive Behavioural Therapy) where we never discussed my pain, how I was feeling, or how it was affecting me or anything. Appts were usually an hr long but not worth attending. ATM i take 90mg Zomorph twice a day, Oramorph 5ml when needed for pain along with paracetamol, Anti-inflammatories, Omeprazole cos Anti-inflammatories cause stomach problems. I take other meds for other things but just before lockdown my GP wanted me to slowly reduce my Morphine to eventually come off it cos he said not best painkiller for Fibro. He managed to refuce it from 100mg twice-a-day but then lockdown hit so not been back. I'm still in pain but it's worse if don't take it. If he is still going to take me off Morphine I need to know what else is available cos I can't tolerate Gabapentin. I know how you feel regards your pain & everything else & I have sat here on my own at night with my meds in my hand thinking it's got to be better on myself to not be here & suffering this nightmare any more & know that my family won't have me around spoiling things by not able to go anywhere (if lockdown ever ends) due to pain or being moody & snappy cos you're always so tired. Since Xmas I have spent more days in bed than ever before & unusually I was constantly sleeping. The weather doesn't help with it being so cold & damp. When you tell people that the cold weather makes more pain in your body, makes your fingers joints etc stiff & painful they say 'oh you must be so happy when summer comes'. Not really cos then you have to put up with swollen stiff fingers & it's bad enough laid in bed sweating through winter without having to sweat through summer. We have 4 fans on the go in our house even during winter: I always have 1 going in living room & 3 in bedroom. Me & my husband spent years sleeping in different bed cos my restless legs would keep him awake at night, now cos of the fans he sleeps in spare bedroom cos our room is too cold. Doesn't help that on top of everything else that causes me to sweat, I am currently going through the Peri-Menopause. What joy!!!!! Good Luck & hope you manage to get yourself sorted without having to resort to the final methods you've mentioned

[bigpigs77]

Thanks for your reply I hope you find something that works for you. I will phone my doctor today and find out what he can do for me.