I am very new to fibromyalgia, the diagnosis, not the symptoms. So waiting on next stage, any tips for exercise or pain management ?

[Life_of_riley_n_cash]

I only got the diagnosis today but I have been struggling with it all for, at least 2 years. I had JVA Stills disease, which has caused thinning and phishing of my right knee cartilage but I am waiting for blood results to see if stills disease is back. Even though I have 1 diagnosis, a thorough plan cant be formed until my results, which is okay with me. However, I am struggling physically right now and I was wondering if anyone has any tips and advice to tie me over because this is very new and I am very lost...

[CM1EDSUK]

There are some resources about coping with pain on the Physiotherapy Pain Association's website which you might find useful. Please see: ppa.csp.org.uk/content/link...

It can all be a bit of 'trial & error' to find out what might work for you. I don't have fibro, but live with daily pain. As with fibro, however, I find that pacing helps. Keep taking breaks between activities, & even if you're having a slightly better day, don't be tempted to overdo things. Personally I also use gentle exercise, but I wouldn't like to recommend any when you're still awaiting your blood tests....only you know how you feel, & your limitations! I also use distraction techniques (anything you enjoy, e.g. a hobby, drawing, reading, listening to music, watching a film), & mindfulness. Hope this may give you some ideas.

[Midori]

Try to keep moving, don't sit or lay down all day, or you will find you have almost nil ability to move at all. I've been in a Wheelchair, absolutely hate it, so I have Forced myself to move and get out of it. I too have a knee that lets me down, but I use sticks or a Rollator to get around on. Hopefully your GP will refer you to Physio, they will be able to target the muscle groups you need to keep strong.

Cheers, Midori

[Hazel_Angelstar Administrator FMA UK Staff]

Hi and a warm welcome to our community. Here you will find information support friendship and laughter too. You can find general information on fibromyalgia at our main website fmauk.org

[JayCeon]

I always suggest getting good physiotherapy (incl. osteopathy, acupressure, acupuncture, yoga etc. exercises (qi gong, tai chi), cryotherapy) - everything you can get your hands on, and if it hurts, do it shorter, gentler (10'' if 30 is too much)...

and getting to know your body in a new way with the help of the people here, looking out for your invisibly moving sweet spots for every single thing you do....

[Stills]

Hello, are you still using this site? I have AOSD and now I suspect fibromyalgia and I’m looking for experiences that may help me?