As the post about benefits and disability was deleted by the OP I thought I would reprint the answer here in case it is of use in the future. Also please remember when you remove your own post you are deleting the time and effort that others put into replying.
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Is fibromyalgia a disability
Fibromyalgia does not automatically equal a disability. There are less than 5 conditions that are in this category. Fibromyalgia is listed in the guidance notes produced with the equality act 2010. It was cited as a condition that can cause someone to be disabled,
There are people with fibro that are not disabled, those that do not consider themselves disabled and those that are disabled by it. Also, disability is one word that is perceived differently depending on its context. DWP and benefits is one, within employment it is another and about getting reasonable adjustments. Within HCP's it is another "meaning" as they are looking to make you more able or able to deal with your current level of ability.
Recent debates in parliament were symbolic at a committee stage but great for awareness. Meetings with ministers have that FMA UK were not part of have resulted in no content that we have been privy to or actions from it. We have been part of many lobby groups in the realm of the DWP and benefits about making changeable conditions like fibromyalgia be treated better. However, the elephant in the room that is Brexit is dominating all the legislative agenda with things like this being another casualty
There is much work ahead on all 3 fronts of benefits, HCPs and employment but one positive is that our new employment booklet will help with the last area.