Hope for F.M.S to be recognised

[Keepstrong]

Hi everyone, as today comes to a close of FIBRO MYALGIA SYNDROME day, I wanted to share with you all some my information of the research I have discovered over the last 20years since I was dignosed and then two year's after that, 18 years ago I was dignosed with Myalgic encephalomyelitis as well. The research of Physio therapist, orthopedic therapist, Psychiatrist and consultants all over the world discovered what I call the unwanted wrist chain.

The chain is if people with FMS take to the bed/ sofa all day, instead of just resting 20 minutes with their eyes closed and alarm clock or phone alarm set for the 20 minutes, then if they Rest or sleep all day even half the day, then it becomes hard to sleep that night. And at night that is the time our bodies heal better , as the day time energies our energies to energies us. If we don't do gentle exercise of stretching even to do chair exercise, then the body Seizes up and that will make the not only body fatigue flair up but also make you less mobile.

This in turn causes depression and anxiety then that causes sleepless nights and the circle is formed.

I know to well how it's so hard to just not want to give into the fatigue and just curl up under the covers, but please believe it will make you more worse. It's so important to practice sleep hygiene, gentle exercise and to do things you love that you still can do. Never put off till tomorrow just what you can do today but always it in baby steps learn your limit and don't push past it.

Warm showers / bath soaks and just run the water on your limbs and muscles as you gently move them under the water and dry upwards to help your oxygen and blood flow correctly.

Try get outside for some air during the day with someone and enjoy the positive energy that the univers has to offer and on rainy day you do the likes of art colouring , colour by number's , play a game cards , or do some craft work. Anything just to keep you occupied and keep your mind active and away from giving your condition a chance to start the unwanted wrist chain. I hope this is if help to you all and I wish you a wonderful new week ahead 🙏😇🤗 be well and keep strong 🤗🙏😇👼

[scotsfibrome]

Thank you for the advice xx

[Keepstrong in reply to scotsfibrome]

Hi Scitsfibrome

Your very welcome.🤗

I hope this week brings you great comfort and happiness. Be well and keep strong 🤗 Ce 🤗

[Fra22-57]

You are so right.sometimes my body wont allow it how hard I fight.great tip on drying body.I didn't know that.I crave to be active and tend to do it when I can but more often pay the price next days after but still fight on.At the moment its shingles as my immune system so low

[Keepstrong in reply to Fra22-57]

Ahhh no you poor kind soul 😞

I hope it all passes soon for you.

Some times with shingles it can upset your ears believe it or not,🙄 so if this does but please god won't effect you, then if you get a old tea cup you can use to put 4 drops of olive oil and heat it up for 7 seconds in the microwave or you can put it into a metal jug and pour boiling water into a pot an sit the metal sugar or gravy bowel up by placing the metal object into it for five minutes. Then get some soft cotton pleats or balls an dip it into the bowel an soak up the oil and place it in your ear oh and if you have tea tree essential oil MUST BE ESSENTIAL OILS not Rhoma one's they are only for oil burner it will burn your skin. But add two drops of the tea tree essential oils when the olive oil is heated and this will kill any bad bacteria and viruses an bring you soothing releaf. You can use the Rest of the left over oils on anywhere in your body that's feeling dry or tight.😐😌 You'll feel more comfortable by doing this . Make sure you keep toped up with paracetamol or neurophen till it all passes if your doctor says it's okay for you to.😁 I hope this is of help and always wash upwards as well as drying you'll feel your body more relaxed and you will feel less stressful too especially if you can use lavender or camomile body wash at night, eucalyptus , tea tree an lemon if possible in the day so you can get energiesed in the day.

You can Go to YouTube and type chair exercise so you can sit in on a chair in your garden and do them. This way you won't seize up 😀😉🤗🤗 I hope this helps you an that this week be a wonderful healthy week filled with lots of fun and happiness 😎😉😊😀🤗🤗 be well and keep strong 🤗 Ce 🤗

[Fra22-57 in reply to Keepstrong]

Aww bless you.you are so kind and thoughtful

[Keepstrong in reply to Fra22-57]

Just trying to be there for Others same as I wished there had if been for me 20 year ago, 🤗 so anytime I can be of help or you just want to chat I'm here okay? 🤗 Same goes for everyone here.🤗 If I don't reply straight away I will soon as I can 🤗🤗🤗😊😊 hope you enjoy your day kind soul 😎😄😊🤗

[Fra22-57 in reply to Keepstrong]

So kind.hope you have a good day😊

[Keepstrong in reply to Fra22-57]

You too kind soul 🙏🙏🙏🤗

[phlebo123]

Thanks for this valuable insight. I like you have discovered that this is exactly the correct way in which to handle day-to-day living with fibromyalgia. It is so important to pace yourself and I also plan my day very carefully. With small periods of gentle exercise, stretching, fresh air, short rest periods and learning to say NO when people ask you to do too much. Take care x

[Keepstrong in reply to phlebo123]

Hi phlebo123 😀🤗

Your spot on and keep up the brilliant work. 😉😊😀

Your showing your condition that your the boss and though you may not be able to get rid the FMS you sure are going to control it the very best you can and get on with your life.😊😁😁😊😊 Happy days.🤗🤗

I hope the advice in replies I gave our other friends here also helps you.🤗

Be well and keep strong 🤗🙏😇

[Holly1968]

Such good advice. I practice all of this and it helps to distract from the pain. I do have flare ups but I still go outside every day for a small walk.

I’m currently having a flare up and can’t drive so my lovely friend is collecting me to take me to the local forest which is covered with bluebells😊☀️😊

[Keepstrong in reply to Holly1968]

Oh wow Holly 1968

That's just brilliant good on you Lass well done 😀😁🤗🤗🤗😉

This is how you keep ontop of flairs you don't let it grind you down. If it stops you from doing something you wanted because of a flair you improvise and do something you can, just like what you have done. WOW I'm so proud of you and you should be very proud of you too lass 😀🤗🤗 when out in the likes of forest or parks, always use your nose for breathing in not your mouth, the reason for this is because your bringing fresh oxygen in to your responsibility and cardiovascular system and this in turn will help to rid of inflammation and spasms anywhere and if you breathe out through your mouth it will help you to rid of the old oxygen that's traped inside your body causing the pain, shortness of breath and uncomfortableness I hope this helps you even more along with the marvelous job your already doing Holly.

Wishing you a wonderful week ahead an may it bring you health wealth and happiness.🤗 Be well and keep strong 🤗 Ce 🤗

[Holly1968 in reply to Keepstrong]

Thank you for your lovely reply. I’m having a really bad few weeks. I still get myself out of bed, have a shower, put my make up on.... then usually have a rest🤣

At least I get up and don’t fester in bed as that would make me feel even worse I think!

Lisa. X

[Keepstrong in reply to Holly1968]

Hi lass 😀 you go girl.

Pase yourself.🤗

Hi sorry for delay. I'm actually in Hospital at the moment. I just had another catscan because I took 3 very severe Seizure's. I was non responsive on each of them and again it was when I fell asleep.of course when I come out of it my osteoarthritis and my Fibro myalgia an myalgic encephalomyelitis gets all cought up in the running too.

So now they are thinking maybe it is epilepsy ontop of the Neurologcal function disorder.

I'm seeing the Neurologist today some stage for results and hopefully dignoses.

I do hope everything is going well for you, I be InTouch soon. Be well and keep strong 🤗 Ce 🤗

[Holly1968 in reply to Keepstrong]

So sorry to hear you are so unwell, hope its gets better for you soon.

Hugs

[Keepstrong in reply to Holly1968]

Thanks so much lass. Medical Dr just came back and said they are just waiting to talk to Neurologist but they are almost serton it's Epilepsy 😭

[YASMINTINA FMA UK Volunteer]

Great post , you have a good week too x

[Keepstrong in reply to YASMINTINA]

Hi Yasmintina 🤗😊

Thanks so much for your kind words.

I hope all the post's here from every and my replies are of help kind soul to you or a loved one.

I wish you a great week ahead and that it showers you with health happiness and prosperity.😀🤗

Be well and keep strong 🤗 Ce 🤗

[Hidden]

This made me smile with Hope. Thanks so much. xx

[Keepstrong in reply to Hidden]

Your very welcome lass, I hope you have a great rest of the week and always delighted to hear from you 🤗 healing hugs with comfort and light Ce.. 🤗😇

[Hidden]

Have a restful week and keep on providing uplifting messages which cheer me up even on my bad days. Good night sweet Angel. xx

[Keepstrong in reply to Hidden]

I will sweet friend, sending you soft comforting healing hugs with light and prayers. Mind yourself an be good to yourself kind soul. Sweet dreams. 😇🙏🤗🤗