Just wanted say hello !!😁😁 wondered how your fibromyalgia started.
How did your fybromalgia start ? - Fibromyalgia Acti...
Welce to posting. I have a feeling that mine actually might have started in childhood as even when I started at school I seemed to be having mysterious aches in my legs that no one could fully explain. As I got older these aches tended to get worse and I was having burning sensations in my calves again for no discernable reason. I then has costo chondritis very severely but it didn't seem to respond to the usual treatment I had pain and burning sensation all around my rib cage. The different pains, fatigue etc then got worse until I unfortunately had to give up work. Both my GP and a Pain specialist that I asked to be referred to confirmed fibro and it was also confirmed by a physio, acupuncturist and Occupational Therapist.x
My father had alot of illness so he was more understanding but Mom was really stiff upper lip she joined the forces before World War II and served in Africa and Egypt nearly been killed when the ship they were in was torpeoded so inclined to tough everything out. You would never have been able to say you were depressed as she didn't believe in depression she definitely wasn't a cuddly sort of Mom.x
You got other stuff along with it at the same time?
That's a lot, I have osteoarthritis and some trapped nerves, have wondered in the past if I had fibro, but my pains have been gone a while now so maybe not. Im almost 50 so I know what you mean :/
I vividly remember that one day I was sorting thru paperwork and developed a stiff neck but I kept going. The next morning I just never felt the same again. That was 15 years ago. I was 20 yrs old. I can’t even remember anymore what it felt like before the weirdness that comes fibro. Just wish I would’ve have stopped before my neck got sore.
Hi feisty-girl,mine developed after breast cancer and subsequent radiation fatigue (I developed a radiation burn where the skin broke down completely and I was left with a weeping sore for a little while, I have had ichthyosis and eczema since birth so very slow to heal) at first I had C.F but as the pains, confusion and muscle spasms etc started as well as the CF I was referred back to the reumy specialist who diagnosed me. Seeing as I have osteoarthritis and spinal problems plus sciatica I was diagnosed with fibromyalgia very quickly- some of us on here waited years for diagnosis whereas I was sent for all sorts of tests and the pain clinic really listened to my G.P’s opinion (he said fibromyalgia only months after the C.F diagnosis) so I am really one of the lucky ones in that I have been sympathetically received by all my medical support- none of my specialists for my various problems has been scornful of the fibromyalgia, I have not suffered the problems that a lot of people have where they have to fight for recognition of the condition. Of course, family,friends and the outside world is a different matter!! My very supportive partner is sure that I developed breast cancer from being on a continuous high dose of oestrogen based HRT after a hysterectomy at 30 ( my dose was never checked or changed as it should have been, I was on it for 17 years!)
I did report it but the G.P who I was under then has now retired and as I need to see so many different health specialists still for my ailments I am wary of rocking the boat too much- it wouldn’t change my condition now and I think the NHS is so overwhelmed at the moment I am just grateful for the support I now have. I do genuinely feel that I am one of the lucky ones- I have sympathetic medical support and my partner is fantastic. I am still waiting for the all clear on my cancer but I haven’t developed any new tumours so fingers crossed. I am grateful for the wonderful facility that this site provides, we can ask for advice from people who really know what it’s like to live with the condition every day,just let off steam about it and unsympathetic medical staff, family members and other people who can be so nasty or just ignorant,it is a great place to visit for me, I look forward to seeing it in my inbox every day. I am an optimist and although like everyone else I’ve had bad times and sometimes been frustrated and frightened by the pain and other aspects of this condition it is better for me to try and laugh at myself and be positive and cheerful-after all,I’m stuck with me 24/7! 😂😂
Hi I think mine started after the birth of my youngest daughter I was 38 when I had her then two weeks after she was born I found my best friend dead I have bipolar and went on a massive high we were put in a mother and baby unit at the mental hospital while I was in there I started getting aches and pains everywhere eventuality I couldn’t move I couldn’t pick up my angel every thing was excruciating I was diagnosed with RA and given steroid injections that was great but unfortunately didn’t help the bipolar I’ve been diagnosed with 8 different things the past 10 yrs by various drs i changed hospitals a few years ago as I felt they kept blaming everything on bipolar I have a proper diagnosis now of pbc lupus OA STC fibromyalgia and severe insomnia at the moment I really just want to be able to go to the loo out of everything I have the two things I’d love is sleep and to be able to go to the loo I think I could cope a lot better if I just had help with those things
Oh hun I am sorry you lost your freind ,hard especially after giving birth and not being able to pick your little angel up.seems like you've been through alot medically to. I can definitely relate to the loo hun I have crohns disease,and we have 5 in the house with 1 loo nightmare 😁😁 cant you go to the loo then?
Sorry just noticed this reply no I have real problems going to the loo it’s like trying to push out a concrete bowling ball they’ve tried everything it’s a nightmare I’ve stopped eating solid food now and have a liquid diet it’s actually helping a bit but it’s only been a few weeks the consultants told me if I’d been born ten years later they could have fixed it typical eh 🤨 I’ve got the best husband in the world and my kids and grandson are my light so it’s not all bad 😊😊
Mine was officially diagnosed 11 years ago, after years of tests and being sent to every specialist I can think of! In the end it was a routine visit to my neuro, who diagnosed me. I basically said to him- look, they’re sending me now to a neuro because I’ve seen everyone else, can you help? He asked me my symptoms and done some pressure point tests (not that I knew at the time what he was doing!) then he turned round and said, you have Fibromyalgia, I’ll put it on my letter to have you sent to a Rheumatologist to confirm, and I’d advise you not to google it! And that was that! When I went to the rheumy though, we went through all my history and they think I’ve actually had it since my early teens at least 🙁
Oh and of course, the first thing I did when I got home was google it! 😳
My health has just gone downhill from there, I have a list now of my illnesses and I think most of them stem from my having FM!! 😞
Hope everyone has as good a day as they can, if it’s not a good day, at least it’s a day that we’ve made it through. Big gentle hugs to all xx
I was the victim of a very nasty crime back in 1990, I was I injured at the time and still to this day have PTSD, my pains started shortly after this incident. I gradually got so bad I have almost now lost my mobility and have widespread pain , arthritis and now also COPD due to myself smoking so much after what happened to me, I wasn't diagnosed until 11 years ago it I believe I've had this since this happened
I'm sorry so many people have to suffer. I was diagnosed September 2016. I was sent to a rheumatologist who didn't want to know once she knew it was fibromyalgia. I've also got IBS, diverticulitis, gastritis, depression, costochondritis, sciatica, under active thyroid, diabetes, oa in knees and one or two toes, Nash (non alcoholic steatohepititis) caused by meds from my drs over the years, spondylitis to name but a few!!! Hope you all have a good night's sleep. As you can see I'm still awake early morning. Love and hugs to you all Lynne xxxx
Mine was from two bouts of glandular fever - second time I told the doctor I had gf as exactly the same symptoms as last time he told me wasn’t possible but sent me for test and came back as gf .. then was made worse after about 5 years latter I fell in a cinema and hurt my back never been the same since
Hi everyone I am new to this site I have always had good health till I had a heart attack after leaving hospital and a truck load of pills my health is not good ,doctor said that he would change my statin but after countless blood tests and hospital visits one more this week . I now can barely walk after sitting down pain around waist and legs arm and hand pins and needles in all fingers even my jaw hurts when eating . The problem I have is doctors have ruled out fibromyalgia is this a common reaction? ,thanks.
About three years ago I think (still no formal diagnosis after being shoved pillar to post I've kind of given up and I now tell people it's fibro/arthritis) I was working in a job I loved and I had taken up running - was really fit and then bam I felt as if I had flu and couldn't shake it off. I was told it was post-viral. But then my eyes were affected, my balance, the fatigue was dreadful and I had to take a year out of my job (unpaid leave) whilst they investigated. I had just about every test you can think of - they thought I had MS, then Lyme disease for a while. Here I am now with flare-ups every so often and then sometimes almost 80% of what I used to be but I've never recovered fully. Sorry long post. When I see people posting that it was stress/traumatic experience/operation etc I wonder why I got it. my last GP appointment over a year ago told me that I had 'some kind of inflammatory arthritis'. Ha!