Diagnosis

[Vivvyy]

I suffer with osteoarthritis, Graves disease, Depression and anxiety. Feel so unwell. I feel sure I have fibromyalgia. Been back and forward to G P but when I asked if I could possibly have Fibro, he said what was the point of a diagnosis as nothing could be done. He did diagnose chronic pain syndrome. I feel I may be able to access support if I had fibr diagnosis. Any advice please.

[Kazhc]

Sadly even with a Fibro diagnosis many of us are still dismissed, by doctors and health professionals in fact I get told that anything I have wrong with me is because of Fibro, and therefore I can’t be helped. Osteoarthritis I would have thought would be the most likely condition for u to get support with, perhaps the arthritis society could be of help xx

[Vivvyy in reply to Kazhc]

Thanks Kazhc. Over the years I have found that anything that isn’t easily diagnosed is put down to my mental health😡xx

[Kazhc in reply to Vivvyy]

Oh me too, I had that for years before I got them to investigate my pain further which is when I discovered I had a whole host of things as well as mental health issues, I understand that it can effect us in a physical way but I’m not stupid and I know the difference!

[Sid_Arthur]

Hi Vivvyy,

You may find this of interest:

fearlessparent.org/suppleme...

Worth reading slowly & carefully ( - & ignoring the lengthy comments section).

Secondly, you may like to investigate the views of (the late) Dr John Lowe, who wrote the book 'The metabolic treatment of fibromyalgia', where he was helped by this approach ! This view and the (quite different) one in the above introductory article remain unfamiliar to our medical profession in the main, it seems.

All the best,

Sid ;~)

20 Feb 2019

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[Vivvyy in reply to Sid_Arthur]

Thanks Sid. I will certainly try to have a read. Brain doesn’t seem to be taking much in at the moment.

Cheers

[infected1 in reply to Vivvyy]

Sorry to hear about your less than helpful GP. I disagree with his comment that there's nothing that could be done so what's the point with the diagnosis. There are several treatment options that could be tried which although they are not a cure, may be able to help you manage your pain better. There are also various medications which you could try. Is there another GP at the practise who might be better than your current one? I would be pushing for a referral to a Rheumatologist if I were in your position.

[Pat9]

I have been diagnosed with it and have to live with it like you but to get any help for it?? As others have said it is still not recognized as it should be no where near it ..unless you have suffered with it many wouldn't have a clue what it's like I do hope you find some respite soon xx

[Vivvyy in reply to Pat9]

Thanks Pat. I think if I knew what it is I will not feel like I’m going mad.

Hope your keeping ok x

[Pat9 in reply to Vivvyy]

Getting there some days good others not so 😘xx