Interesting Research on Fibro! - Fibromyalgia Acti...

Fibromyalgia Action UK
48,244 members59,873 posts

Interesting Research on Fibro!

FoggyMoggy
FoggyMoggy

I know they say it's a cure which I'm always sceptical about but it may lead to one if it's true - I've heard the hands being mentioned before. This research has found extra mystery blood vessels in hands & feet of people with Fibro.

fibromyalgiaresources.com/f...

10 Replies
oldestnewest

Fingers and toes crossed

This may be a start to finding a cure

FoggyMoggy
FoggyMoggy in reply to Rose54

Yes hope so, Rose. I don't get pain in my hands. People's symptoms vary so much it's hard to imagine one thing being the cause of it

That would be nice.

Thanks FoggyMoggy it is quite interesting. I have read this before a few years ago but I truly hope that more research can be done on this? Thanks for sharing :)

FoggyMoggy
FoggyMoggy in reply to TheAuthor

You're welcome, Ken. Yes, I'd read about the hands but not about blood vessels elsewhere!

TheAuthor
TheAuthor in reply to FoggyMoggy

There was a small scale research project undertaken in Belgium relating to blood vessels but sadly it was never followed up.

Hi FoggyMoggy

This research has been around since 2013 but nothing further seems to have come out of it. Difficult to say, but it may be that nothing else has come out of it because they now realise it is just a symptom rather than a cause. Who knows. Guess we won't find out unless someone else does some more research on the issue.

Gentle hugs, Margaret. xxx

FoggyMoggy
FoggyMoggy in reply to ukmsmi4

Hi think this is an update on the previous research, Margaret. It was just the hands before, which I as read, but this seems to have elaborated to other areas and is also dated July 2017. There's always the possibility though that they are referring to earlier research. x

ukmsmi4
ukmsmi4 in reply to FoggyMoggy

I'd love to think that was the case but unfortunately I don't think it is an update of the research, just a rehash of the original article. Of course I may be wrong and I'm no scientist. But I've looked back at the articles reporting the 2013 study and compared them to the more recent ones as per the one you have quoted.

I can't find anything in the new ones that looks like an update of what was reported before. For instance in this 2013 article intidyn.com/news-events/new...

they say "As Dr. Rice explained, “we analyzed the skin of a particularly interesting patient who lacked all the numerous varieties of sensory nerve endings in the skin that supposedly accounted for our highly sensitive and richly nuanced sense of touch. Interestingly however, this patient had surprisingly normal function in day to day tasks. But, the only sensory endings we detected in his skin were those around the blood vessels”. Dr. Rice continued, “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidencs that the blood vessel endings could also contribute to our conscious sense of touch… and also pain.” And "What the team uncovered was an enormous increase in sensory nerve fibers at specific sites within the blood vessels of the skin. These critical sites are tiny muscular valves, called arteriole-venule (AV) shunts, which form a direct connection between arterioles and venules (see diagram)."

In the 2017 article it says "To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts." Seems to me that is just a synopsis of the above comments from the 2013 article.

I've found a couple of other articles on the study that were released in 2013 that also bear a lot of similarity to the comments in the 2017 article.

healthline.com/health-news/...

nationalpainreport.com/rese...

I have also found another recent article as well as the one you have quoted

medicalhealthnews.info/fibr...

which as you can see seems to be an exact copy of the article link you have found. Except for a couple of things. The one you found gives the quote in the middle as being from Dr Deloph L Mike. Yet in the 2017 article I found, exactly the same quote is given as being from Dr Frank L Rice who was the original lead scientist on the original 2013 study.

It's all very confusing. As I say I'm no scientist and of course I may well be totally wrong, but from what I can tell, I think it is just a rehash of the original study. However, that is just my opinion so if someone can figure it out and tell us otherwise, that it is indeed a report of new findings, then please say so as I'd love to think they have made progress.

Hugs, Margaret. xxx

PS. Note to admin. If any of these links are not allowed because of adverts or whatever, rather than just delete them can you just repaste them back in as text so people can copy and paste themselves to get the relevant article. Or let me know and I'll do it myself. Thank you.

FoggyMoggy
FoggyMoggy in reply to ukmsmi4

Thanks for doing all that research, Margaret. I'm sure you're absolutely right. I didn't go delving because a friend tagged me on Facebook and so I assumed it was new research. I would have gone delving in the past but fibro fog and feeling jaded much of the time prevents me from doing too much - well to be frank I've been doing something much more fun with photographs! But it looks to be just a rehash from what you're saying. I know sometimes research can take a fair old time to see the light of day and needs to be replicated and then trialled but I won't hold my breath. x

You may also like...