Anybody have two diagnosis - Fibromyalgia Acti...

Fibromyalgia Action UK

59,451 members66,497 posts

Anybody have two diagnosis

20 Replies

Has anybody got fibromyalgia and osteomalacia, my doctor Says I may have had a wrong diagnosis and I may only have osteomalacia.

But all my symptoms are from fibromyalgia.

Can we apply for pip if I have fibromyalgia and osteomalacia.

20 Replies
Janet28 profile image
Janet28

Hi Hidden You can not claim pip for any condition unless it it life threatening, it's how your illness effects you and not what you have or haven't been diagnosed with you I'm afraid and you have to have lots of evidence from the professional health service that have or are treating you, to say how you are effected by your symptoms. Soft bones sometime show up on xray but his is something totally different from fibromyalgia, these thing take a long time to diagnose and they do have to rule out lots of other more serious conditions like RA, Lupus or limes desease etc.

Hope this helps

Luv Jan xx

Sorry you are suffering with those conditions. The diagnoses itself will not help with PIP. It all depends how it's affects you? Is your mobility affected? Are you able to cook/shower independently? Etc

Have a look online to see how many points you may get and if it's worth applying for? It's a very long form to fill in!

Lou1062 profile image
Lou1062

I have both, the osteomalacia stems from my inability to metabolise vitamin D, are you on supplements for this xx

BlueMermaid3 profile image
BlueMermaid3 in reply to Lou1062

Hi Lou

That's really interesting.

How are you doing now my friend? Any better?

Lu xx

Lou1062 profile image
Lou1062 in reply to BlueMermaid3

Ok but still waiting for surgery, bit of a long haul xxx

BlueMermaid3 profile image
BlueMermaid3 in reply to Lou1062

It has been a long time hasn't it?

I hope you get sorted soon.

Lu xx

in reply to Lou1062

Yes i have take supplements. Do you have fibromyalgia also?

Lou1062 profile image
Lou1062 in reply to

Yes I have fibromyalgia xxx

Thought you'd already applied for this the other week and CAB was helping you fill the forms in???????

in reply to

I did go to CAB but they noticed I my time to return the form had gone over which meant the application to be refused. So I have to go through the whole process again, waiting for another form.

in reply to

So when you get the new one instead of asking questions on here of how to fill it in - suggest you make an appointment straight away with CAB so that you do get it in on time.

TheAuthor profile image
TheAuthor

Hi Hidden

I am so genuinely sorry to read this, and I am not sure that osteomalacia would qualify you fro PIP on its own? Reading about the illness it is not perceived as a disability sadly by the health services. I had thought that you had previously applied for PIP unless I am wrong? I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

neenee47 profile image
neenee47 in reply to TheAuthor

Sorry but what is PIP

TheAuthor profile image
TheAuthor in reply to neenee47

Hi neenee47

PIP stands for Personal Independence Payment. It is the new disability benefit that has replaced DLA (Disability Living Allowance).

All my hopes and dreams for you

Ken

in reply to TheAuthor

Hi Ken, yes I did go to CAB but my time expired and I have to go through the process again, just waiting for another form. Thanks for the info and making me feel welcome.

TheAuthor profile image
TheAuthor in reply to

Good luck my friend :)

I have fibro and Sjögren's syndrome and yes you can apply for PIP...good luck with that x

bluebell99 profile image
bluebell99

Best to check with the Citizens Advice or the DWP themselves.

X

Janey121314 profile image
Janey121314

yes

Shelby13 profile image
Shelby13

I have a rare form of osteomalacia , servere fibromyalgia , genitive spine disease with c5 c6 Collapsed , spinal senous. A extremely enlarged liver . Torn carliage in both knees and a bakers knee and a wrotting bone in my left knee , servere migraine riddled in pain but they tell me I’m fit for work paying me a middle rate . With deductions for made up reasons ... good luck

You may also like...

Does anyone have a diagnosis of ankylosing spondylitis?

you have to learn to live with it,\\" without investigations being done. Does anybody here have a...

Fybromyalgia Diagnosis

that the three may be all connected and not ‘just’ long-covid or postpartum symptoms. My GP last...

Recent Fibromyalgia Diagnosis

is Fibromyalgia. I am concerned that I have been misdiagnosed when really it is Fibromyalgia.

Diagnosis

you had fibromyalgia? I have an underactive thyroid and I know that we are at risk of......

Fibromyalgia diagnosis

I have been suffering for some time now I've had various scans and X Rays. My bloods were showing 30