Help: Hi all. Just trying to find out... - Fibromyalgia Acti...

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Diana60 profile image
6 Replies

Hi all. Just trying to find out more about this crappy disease so we can STOP IT!

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Diana60 profile image
Diana60
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6 Replies
Fibrofoggiest profile image
Fibrofoggiest

Hi Diana, I can hear the desperation in what you write, sadly, I fear that in the over 35 years that I have suffered with fibro, no cure has been found. Yes, there are much better drugs to help cope with the pain side of things and they have made a lot of difference for some people. I also wonder if you have thought of a pain management course which again some people have found very helpful. I am sad to say I don't think the ability to "stop it" is likely to be found very soon, and I certainly don't anticipate it happening within my lifetime - which I wish with all my heart they could, but in reality, and do forgive me please for not being more positive, I fear it will not happen.

Could I suggest though that you read the post below your from Ken, and go to the link, it makes for some interesting reading.

Sending you lots of positive healing vibes !

Foggy x

Diana60 profile image
Diana60

Or how do we keep from super gluing pur spouses lips ehen they say, " I just deal with my pain"?

Fibrofoggiest profile image
Fibrofoggiest in reply to Diana60

I can only suggest hiding the superglue in a very secret place, and make your husband go to a fibro therapy course and listen in for a few times, maybe then he will realise what you are having to contend with on a daily basis 😳

Sending lots of positive vibes your way 😊

Foggy x

Diana60 profile image
Diana60 in reply to Fibrofoggiest

Lol. Thanks. I really do have a great supply of superglue!

Diana60 profile image
Diana60 in reply to Fibrofoggiest

Where would I find a fibro therapy course? Really, I've never heard of them, but would love to go-both of us!

TheAuthor profile image
TheAuthor

Hi Diana60

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of your suffering and struggling and I sincerely hope that you can find some resolution to these issues. There are some printable fact sheets about Fibro on the mother site that you could print off and give your spouse to read? I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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