IM struggling with day to day life so very down.fribo flare-ups since Xmas been to doctor referred again to rumetoligist phiso and memory

[dgbnlm]

Clinic bought memspause tablet appointment not until may in pain sleep erratic.moods low.

[Dragonfly66]

Hi you sound very much like me,life is at a standstill ,I make arrangement to do stuff then have to cancel I have just been diagnosed with thyroid prob and doctor wants to leave making a referral to se if the thyroxin drug helps . I have been ill since dec each flare up gets worse and lasts longer

[TheAuthor in reply to Dragonfly66]

Hi Dragonfly66

I am so sorry to read that you are also feeling so low and down, and I genuinely hope that you can find some resolution and relief to this issue.

I was wondering if you have discussed the possibility of counselling with your GP? As quite often just having somebody to offload too can help enormously?

Another suggestion, and please do not be offended, but I was wondering if you have ever thought about ringing the Samaritans when you feel really down? As they can be wonderful and very understanding? I have pasted their telephone number below.

As I have said, please do not be offended, I have offered you their telephone number out of friendship and concern for a fellow fibromite.

Telephone: [phone]

I really hope that you start to feel less down soon, and please remember that we are always here to answer your posts if you ever need a friend.

All my hopes and dreams for you

Ken x

[Dragonfly66 in reply to TheAuthor]

Thank you for suggestion and reply,I have had counselling and cognitive therapy which helped.im sorry if I gave the impression I was down I grieved for my old life but have a new one I now make jewlery and other crafts.i have lots of fab true friends and family,you soon find out the best friends when you get sick,my husband says he thinks I'm courageous and still make him laugh,today I put a few pieces of rice in his ham sandwich looked like maggots as an April fool ha.thanks again x

[TheAuthor in reply to Dragonfly66]

Hi Dragonfly66

I sincerely hope that you are feeling as well as you possibly can be today? Please do not apologise, if I see a fellow Fibromite suffering then I do everything I can to help!

I am so delighted to hear that you have a wonderful family and friends and a new job. I really understand when you say that you grieve for your old life, as I do all the time. I had a fantastic career and now it is mostly gone, so I do understand.

Take care and if you ever need somebody to moan at then I am here!

Ken x

[dgbnlm]

Yes you said it well a standstill

every day the same nothing to look forward too

not enjoying life at all wonder if its going to get better

so irritating as daily life struggle even the kids are feeling it they forgot what like before this fribo taken over.

[TheAuthor]

Hi dgbnlm

I am so sorry to read that you are feeling so low and down, and I genuinely hope that you can find some resolution and relief to this issue.

I was wondering if you have discussed the possibility of counselling with your GP? As quite often just having somebody to offload too can help enormously?

Another suggestion, and please do not be offended, but I was wondering if you have ever thought about ringing the Samaritans when you feel really down? As they can be wonderful and very understanding? I have pasted their telephone number below.

As I have said, please do not be offended, I have offered you their telephone number out of friendship and concern for a fellow fibromite.

Telephone: [phone]

I really hope that you start to feel less down soon, and please remember that we are always here to answer your posts if you ever need a friend.

All my hopes and dreams for you

Ken x

[dgbnlm in reply to TheAuthor]

Thank you

just lost I've been to gp 4 times think they leaving me to impact pain clinic as they have phycology there I've just had a look at last letter says of i need again to get referred by gp

o need it now.X

[dgbnlm in reply to TheAuthor]

I have made a gp appointment for later

thank you

[TheAuthor in reply to dgbnlm]

The problem is that this will take time to get your referral, so I would suggest that you keep on discussing matters with your GP until you get your referral through.

Take care

Ken

[Ginsing]

Morning Draginfly,

I know exactly what you mean stand still is so apt. I was released from rheumatology and post ed over to lympho specialist . Mean time I was told "I was care in the community"

So now I have the support of my doctor who appears baffled and just pushes my pain killers around and says I ought to send you back to your specialist. *** right but nothing happens except my disability grows as does my need for pain relief. I also find myself part of the lonely brigade and without this site and healthunlocked I would be in the depths of despair. But we wont let that creep up - we will be positive and stamp our feet while standing still.

Soo thank you every one for all of your support it is tremendous and very much appreciated. I dont thik we express our thanks enough!

xxxxxxxGins

[dgbnlm in reply to Ginsing]

I am nickname the hermit as the pain depression etc. it does take pleasure away if i had a good night sleep and woke up feeling refreshed id be so happy

chins up carry on .your post is exactly our lives lol xx

[solowheelie]

fibro is just horrible isn't it. You think things are better and pick up your life again and then all of a sudden it's attacking you again with another flare up and people say 'you look so well' grrrr.

I find that limiting the amount of things i put into a week / day even in my good times helps to enable me to keep going, if i allow myself to get too tired i can go downhill quickly

Its a pain to think 'i want to do xyz but can't because i already have too much in the week' but the cost of not doing so is too costly xxx

[dgbnlm in reply to solowheelie]

Its such a confusing illness

not been up since before Xmas just want a break.i forgot who Me is

yes it's a balancing illnesses.X