newly diagnosed

A huge thank you to everyone who replied and has welcomed m to the site - it has made me feel more positively about the condition already. I look forward to hearing about everyone's lives and especially as how to manage this. I agree humour really is the best medicine! Sheena xx

[pip_r]

Hi,

Yes, I think I would have gone mad by now if it wasn't for my sense of humour, which I admit is somewhat warped

Pip xx

[Fibrofoggiest in reply to pip_r]

I say nothing

[Lucyhobbit in reply to pip_r]

It helps to have a slightly warped sense of humour...especially when you feel like you've lost your marbles (not sure I've ever had many of those!) But seriously, laughter really is one of the best medicines.

[Hidden in reply to pip_r]

I'm saying nothing either boing boing!

xx xx

[Fibrofoggiest]

Hi sheena,

I'm glad you've found our site welcoming, and that you are now a little more.positive about the future

Keep popping in, you never know when we are going to be having one of our mad moments

Foggy x

[nedd]

Welcome hope tonight sees you on an upper.

A chronic condition produces a roller coaster of emotions. I think of myself as a champagne cork. You may push me down amongst the bubbles put I always seem to pop up again.

I think one of the hardest things to crack it cutting yourself some slack.

And that thing they call pacing yourself can be a bit tricky when all manor of things demand attention.

This site has really helped me remain positive. Well most of the time.

I dipped into it because of the humour originally. Sometimes it's a job to remember there is more to life than the daily grind of coping with the high jinks the body inflicts.

This site is a bit of an antidote.

I love it's variety.

Be kind to yourself. Sending you positive vibes through space,

Here catch.

Ned

[Hidden in reply to nedd]

Hi Ned

It was lovely to read that and I agree with Ken completely, it truly is a very rewarding reply. I hope the site continues to provide you with the humurous antidote and also any help that you may need.

Giggling fluffies filled with pain busting powers on route to you

xxxsianxxx

[TheAuthor]

Hi there

I think this is the most rewarding post that I have read tonight. If we can make a difference and help somebody the reward we all feel inside is tangible; helping each other helps us all.

Welcome to the site and take care of yourself

Ken x

[nedd in reply to TheAuthor]

Ken

Ain't that the truth.

Have you come across the site

Random acts of kindness.

Ned

[TheAuthor in reply to nedd]

Hi nedd

Not seen this site but I will have a look for it sounds really interesting.

Hope you are as well as can be expected.

Ken

[liz123]

I am newly diagnosed, just last week as well. I have been looking on here for a while as it is so humerous and helpful and made me feel better before the diagnosis came along.,

Thanks

Lizzie

[Hidden in reply to liz123]

Hi Lizzie welcome to the site I'm pleased you have found us all to be helpful and of comfort during the process of your diagnosis and look forward to seeing you about too.

Please see my reply below to Sheena regarding our Mother site fibroaction and hope you continue to find the site helpful

Healing fluffies heading your way Lizzie

xxxsianxxx

[liz123 in reply to Hidden]

Thank you Sian . There is so much to take in at the moment and I am trying to recuperate after the hip op. Everyone is so helpful and a lot if what I want to know is answered in other peoples questions. I will be a regular on here I know

[Hidden in reply to liz123]

Yay!

You will be up and boinging in no time Lizzie LOL

boing boing!

xxxsianxxx

[TheAuthor in reply to liz123]

Hi liz123

Welcome to the site. I hope that you find it as useful as I have. I also hope that you are as well as can be expected?

Take care

Ken x

[liz123 in reply to TheAuthor]

Thank you Ken. I am having a good look around at what people have to say and their problems are like my problems too. Having had the hip replacement has taken up much of my thoughts for now and when that heals I can go forward with working out how I will live with the fibro.

my biggest problem at the moment is sleeping. Since I have been home I have only been able to manage a couple of hours a night and the nights are so long aren't they?

I look forward to seeing more posts daily. Bye for now x

[Hidden]

Hi and welcome sheena I am so pleased that you've found the site welcoming and humourous too Laughter is the best medicine I totally agree

Have you visited our Mother site fibroaction.org ?

You will find a wealth of information related to Fibromyalgia and other related subjects too such as benefits and even a list of fibro friendly doctors/consultants to the most up to date research. You can instant access through clicking on the butterfly in the top right of you screen

Looking forward to seeing you about and sending you healing fluffies to help ease any pain and discomfort

xxxsianxxx

[kes2008]

Hey folks recently diagnosed with fibro after 3 years of fighting every doctor and consultant to take me seriously .. Finding it hard to adjust as I have ways been full on work work work and then wonder why I was shattered .. Spend my weekends in bed recovering finding it hard to slow down .. But I know I have to . I really don't think my family and co workers know what pain I am in on a daily basis as I tend to just plod on .. But starting to get really down in the dumps more than ever now as they just don't understand .. Keep trunking of calling a family meeting lol and team brief at work just to sit down and explain to them all but they look at me as if to say ... Just lazy cow .. Any advice on how I can explain hinges to people without feeling sorry for me .. As I don't want that I just want them to realise I can't do stuff like I used to ...'help

[TheAuthor in reply to kes2008]

Hi Kes2008

Firstly, welcome to the site and I sincerely hope that you find it as useful as I do.

I am so sorry to hear of your diagnosis and the struggles that you are having in trying to explain yourself to family, friends and work colleagues. I always believe and say to others, that to our loved ones we are the most special person in the whole wide world. Bearing that in mind I was wondering if you thought that they might be genuinely worried about the state of your health? I understand that sometimes we find it more difficult to open up to the people closest to us. Maybe they are having the same problem as you in opening up and talking about your illness?

You mentioned about calling a family meeting, why not do it? Just in case your family are worried about you and cannot bring themselves to open up? Your post comes across that you are clearly devoted to your family and your job. So I cannot help but think that they are more than likely devoted to you as you sound like a wonderful, bubbly, honest and caring human being. I sincerely hope that you can find the answers that you are looking for.

All my hopes and dreams for you.

Ken x