Didn't realise till recently...

[Jackieblu]

On joinin this great forum I did not realise how all my symptoms are just part and parcel of Fibro! Has anyone out there had symptoms that they didn't realise was all part of this "wonderful" affliction called fibromyalgia? Jx

[Ginsing]

Hi Jackieblu,

Oh Yes I have found that my sometimes being unable to bear noise is because of Fibro just like my tinnitus which comes and goes.

I am affected by bright lights as well and when they flash it can be ghastly.

What else well all sorts basically from head to foot there are intense pains and muscles that go hard and wont perform.

Sometime exhausted to the point of no return etc etc etc

I wonder if going on is a symptom forgetfulness certainly is Now what was I on about xgins

[RIBBONPINK in reply to Ginsing]

HI XGINS I CANT BEAR SUNLIGHT ON MY EYES AS GET SEVERE HEAD ACHES AND MY MUSCLES GO HARD AND CONTRACT WHICH MAKE MY MUSCLES BURN OUT CANT DO MUCH NOW TRY TO DO A LITTLE EACH DAY.I KNOW THE FEELING PINKRIBBONS

[lcm27]

Hi,

I am also relatively new to the forum, only joined last month, but have found it invaluable, what a massive resource of information. Like gins, I to suffer from tinitus, sometimes worse than others, and yes flashing lights are a nightmare. I seem to suffer from about 90% of what people are talking about, some worse some not so bad. But the forum willl give you a great insight into how people are coping, how to deal with your GP and what to ask them, how to fill out forms, ATOS and DLA/PIP, but also great stuff on how certain foods help or hinder us. Its a great place for a laugh and some not so great days. Its been amazing and has given me great hope that I'm a normal fibro sufferer and not some sort of alien that no-one understands. Do go round the whole site, there is loads of really helpful hints etc. xx

[Ginsing]

How right you are ICM there are lots of very valuable bits of information pn fibroaction.org and also from friends with fibro.

Never be afraid to have a go and ask questions.

xgins

[Jackieblu]

Hey guys thank u so much,I'm so grateful for all your suggestions n comments! Jx

[janlou]

Yes I started feeling not myself nearly 2yrs ago, I worked in a busy Day Nursery. I started to avoid doing tasks that I could do with my eyes shut!!! Simple things would make me question myself, and I would not be able to think correctly.

Since Nov 2011, I have not worked, its been a nightmare for all of us...Just started physio, and I hope this will help me.

JAN

[Jackieblu]

Hey Janlou I to worked in a busy nursery,I worked my way up to ass manager and that was ten years ago this nov! I struggled for about eighteen months before that,workin and runnin a busy family home,oh how my life has changed! It started of with my left knee,they discovered I had osteoarthritis and has now gone to my right one,I now need a double knee replacement! I had the symptoms of Fibro as long as the arthritis and find it so debilitating! Got docs tomorrow after me attending a chronic pain prog at my local hospital! Wonder when the knee ops goin to take place now! I'm terrified cause I'm very squeamish and it sends me into a blind panic just thinking about it! Consultant said it might not help with me havin the Fibro aswell! Oh the joys!! Jx

[Jjudith]

Yes, I had some symptoms that came and went over a number of years which looking back were signs - such as extreme exhaustion, back pain, pain in my left arm, broken sleep, snoring. Then I got 'it' properly and it still wasn't diagnosed and although I was a Master's Degree Nurse I didn't know it was fibro - it must be the world's best kept secret that 'it' is out there. When it started, I got extreme sensitivity to most drugs - I almost didn't believe it myself so I kept on taking them thinking it must be in my mind - until I was forced to concede that I just had a different reaction to medicines to most other people - such as paradoxical effects to sleeping pills (stopped me sleeping altogether) and many pain killers (that either made the pain worse or caused me a whole lot of other distressing symptoms). I must be the only person in the world who gets diarrhoea when taking CODEINE!!!! Then I got left eye pain and erratic eye pressures and my accommodation in my left eye kept changing about 10 times a day - I had to keep a bag of glasses in my bag and keep changing them to try to read; they gave me eye drops and I had a paradoxical effect to those and it put my eye pressures through the roof and also gave me face pain on that side of my face, plus tinnitus and broken sleep. They thought it was glaucoma - but it wasn't it was part of Myofascial Pain Syndrome, one of fibros nasty friends, in the end the symptoms were only cured with an operation - the same as for cataracts but I didn't have them. So the more people you speak to, the longer the list.

So just keep thinking of it as an exciting adventure finding out what fibro does for you. And remember we are all here thinking of you. Lots of hugs x

[Jackieblu in reply to Jjudith]

Hi Judith I always try and stay positive n thanx for you reply! You've been through the mill aswell but seem positive,long may it continue! Hugs back! Jx

[haribo36]

I had a year and a half of constant uti's,and was forever taking anti-biotics.Dont know if recurrent uti's are connected with fm but I know that the continued anti-biotic use has made my fm so bad again.Have decided not to take them anymore and am now taking probiotics x

[Jackieblu in reply to haribo36]

Hi Haribo36 there's always something that we've to try and relieve with this bloomin condition! If its not one thing its another,its so vast! Thanx for your reply and squeezy hugs! Jackiex