molar pregnancy - experiences

Hi ladies, I hope everyone’s ok. I had a scan today following an initial slow HCG rise followed by fast rising HCG. They’ve told me they highly suspect a complete Molar based on TV scan and high HCG - they’re rescanning on Friday to confirm. I’m gutted, I did three rounds of ICSI, yielded all aneuploid blasts, then had a natural MMC at 7.5 weeks, now this.

Does anyone have any experience with a molar and can give me hope? I’m petrified, petrified of the cancer risk and never being able to conceive again 🥹❤️‍🩹

thank you xxxx

[Allotmenteer16]

Sorry, I don't have experience of this but just wanted to say how sorry I am you are going through that, it must be scary for you. I really hope it is a better outcome than what they suspect. Be kind to yourself and I will keep everything crossed for you xx

[Hidden in reply to Allotmenteer16]

Thank you so much, I’m really praying everything is ok and I can move on. X

[Whatwillbewillbe_]

I’m really sorry for everything you’re going through.

There was a point where I thought that I might have also had a molar pregnancy ( it ended up being a cervical ectopic pregnancy). At the time I did lots of searching on the forums. I was also getting worried because I already had chemo in 2022 for cancer and didn’t want to go through that again.

I would say really try to take each day as it comes and really advocate for yourself to be watched closely and get answers. You don’t know for sure yet whether it is molar, it may not be. If it is, you will get through it. Sending you lots of strength x

[Hidden in reply to Whatwillbewillbe_]

Thank you so much - I’m sorry you went through the scare too. Do you mind me asking what a cervical ectopic looks like on scan and did you also know your hcg numbers? Thank you again, I’m very scary but ready to face it head on.xx

[Whatwillbewillbe_]

do you mind if I send you a private message ? It’s a bit of a long story!

[Hidden in reply to Whatwillbewillbe_]

Of course not! No rush, thank you xx

[chocchoc12]

Yes, I had this. Please don’t panic, you will be ok. I had an initial scan at 6 weeks and they missed it because of the low resolution. I knew something wasn’t right. Had another scan 10 days later at a different place where the technician told me she was very confident it was a molar pregnancy because it looked like a bunch of grapes on the scan. I too panicked. Went home ( it was Friday) read as much as I could on it then rang to get into a doctor. Couldn’t get a doctors appointment until 2 weeks away. I knew I had to get it removed ASAP. Drove myself up to emergency on the Friday night, burst into tears and told them what happened. They rang a doctor/surgeon right then and there at 9pm and he fitted me in the next day for an appointment. Had it removed 3 days later. My HCG would have been around 300,000 or more. I was so nauseous I couldn’t keep any food down. After it was removed it was 50,000 and took almost 9 weeks to get it back to zero. I was very closely monitored having blood tests every 2-3 days to make sure the numbers were dropping. My advice to you is (if it is a molar) don’t panic, get yourself a good surgeon ASAP. There have been plenty of people who have gotten pregnant following a molar pregnancy.

You should be still be able to get pregnant but you may need to wait 3-6 months to try again to make sure HCG levels are below 5 and it doesn’t grow back (this is the advice the doctor gave me). I had a chemical pregnancy a year later then moved onto IVF another year later at 44.75 years old. Did 6 back to back rounds, have 30 frozen embryos and waiting to hear on current transfer.

[Hidden in reply to chocchoc12]

Oh my how scary and glad you’re in a much better position now. I’ve done the same and been googling like absolute crazy and panicked myself into a pit of worry, I am lucky they have caught it early but in 10 days my HCG will be around 300,000 if it keeps rising. Luckily I go back today where they will confirm and they will get me in asap for surgery - I am not sure what the surgeon will be like? Do I need a specialist?. IF it is a molar we have a gyae oncology centre at Charing Cross where every molar pregnancy gets referred to and I think they have the largest GTD experience worldwide - so I’d feel in safe hands, im just incredibly scared. Thank you for your message xxxxxxx

[Hidden in reply to Hidden]

Also WOW 6 back to back rounds!! Incredible!!! Wishing you all the best xx

[chocchoc12 in reply to Hidden]

I think the gynaecologist does it and you get it removed via d n c. Sounds like you’ll be in good hands. Good luck with it xx

[Allotmenteer16]

Hey Hidden I was just wondering how you got on on Friday, hope you are okay x

[Hidden in reply to Allotmenteer16]

Hiya. Thank you for checking ❤️‍🩹 they strongly believe molar and I go in Wednesday for D&C. Very sad but got to keep positive xxx

[Allotmenteer16 in reply to Hidden]

I'm so sorry sorry to hear that, I hope it goes okay on Wednesday, although I appreciate it will be very difficult for you. Like you say keep positive but allow yourself some time to grieve as well. xx