Myself and my husband have been working towards icsi for infertility for nearly two years. My husband has Kellmans syndrome and I have PCOS and endometriosis, so we knew it was unlikely we’d ever be able to have biological children. Especially after my husband was diagnosed with a syndrome affecting his fertility at birth. But drs always told us there was a chance. Perhaps out of kindness or curiosity for him to pursue treatment as a guinea pig for an under researched syndrome.
After a long two years we have decided to close that chapter of having biological children yesterday, after we were told this week that if they did mange to find sperm then it’s likely the syndrome would be passed on to the child. Up until now we were told it was a fluke in the genes and couldn’t be passed on. We couldn’t risk knowingly inflicting harm on a child.
I think we’re grieving that journey that we’ll never have with biological children and are faced with the dilemma of next steps. I know that we would love anyone that we were lucky enough to come into our lives, but wrapping my head around the idea of it being someone else sperm/someone else’s baby is quite difficult right now.
I know that biology doesn’t make a parent, and that there’s all sorts of wonderful combinations of families now, but I never envisaged that as our journey. A part of me always hoped his treatment would work.
I’m not really sure what it is I’m looking for. Maybe coping strategies or ways of dealing with the grief of that lost journey, or how to adapt to a new reality. Fertility related support maybe. I’m not sure. I just feel lost and betrayed by all the things you’re told life will be as an adult. Which in itself is naive. Part of me knows that life is complicated and doesn’t go to plan, but part of me feels angry. Both of us work hard and make sacrifices to achieve what we want to in life, but with this it’s out of our control. I guess it’s helplessness.
Any advice or resources would be appreciated.
we’re leaning towards donor sperm now but I’ve not researched this up until now, so any advice or places to find stories from parents and donor children would be appreciated. Thank you.