Fluid in baby’s neck not checked at d... - Fertility Network UK

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Fluid in baby’s neck not checked at dating scan

ray_of_sunshine_ profile image

Had a dating scan today but baby’s position meant sonographer couldn’t check the fluid in baby’s neck.

I tried going for a walk and moving around on the end but it wouldn’t move into a suitable position.

Has this happened to anyone? If so, what did you do with regards to screening for Downs, Edwards etc?

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ray_of_sunshine_ profile image
ray_of_sunshine_
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22 Replies
Ivfgotadream profile image
Ivfgotadream

I had the same issue with my twins - neither would sit still and not given a second opportunity by the NHS. I paid privately to have the NIPT done - mainly because my twins are untested embryos after my previous embryos which I PGS tested were all “abnormal”

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Ivfgotadream

Thanks for replying. What did the NIPT cost? Is that just a blood test or scan too?

Ivfgotadream profile image
Ivfgotadream in reply to ray_of_sunshine_

It’s not cheap. I think it was around £350-400 and included a scan to check gestation, randomly the blood sample gets sent to America (but I chose a very comprehensive test as having twins) so results can take up to 2 weeks.My first blood test came back no result so in a panic I also paid to have the Combined Test done (which is the one the NHS would have attempted at your 12 week scan) just make sure we would have some kind of result abs that was £170 - the good thing about going private is that they just keep going until they get the measurements they need - no time limit like the NHS

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Ivfgotadream

The one I’ve found in my city is £500 but it’s just blood tests. Do you think just the blood tests in there own are enough?

Ivfgotadream profile image
Ivfgotadream in reply to ray_of_sunshine_

If you are sure of your dates then you don’t really need the scan - it’s only really to make sure you are measuring a certain size x

Emmaxxx profile image
Emmaxxx in reply to ray_of_sunshine_

I paid £500 for the harmony blood test 100%worth it!

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Emmaxxx

Thanks Emma x

Can I ask which company you used?

Emmaxxx profile image
Emmaxxx in reply to ray_of_sunshine_

I used my local spire hospital. I am so glad that i chose that test because no way was I going to have an amniocentesis or anything that would increase the chance of miscarriage xx

Zebedee1971 profile image
Zebedee1971

The bloods should flag up if there is risk of downs or one of the two other common abnormalities. They can also usually tell from the face shape in the scan if baby has downs (the features are flat in comparison to a normal developing foetus). They use the scan and the bloods to calculate risk factor, however the bloods should also be enough. For example, my risk for downs based on my age alone was something like 1 in 50 but after the scan+bloods it was calculated at 1 in 4000 chance or something like that. It just means that maybe your risk factor might be higher because they only have one to go on. We paid £350 for an indepth scan at crp clinic in epsom, with a professor, so we felt really reassured afterwards. You could pay for a private one or ask for another one on NHS? Did they not suggest this? X

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Zebedee1971

Thanks Zebedee, they didn’t offer another scan - just kept saying the 20 week one is a back up incase situations like this happen and I was a bit overwhelmed by it and didn’t think to ask for another scan 🤦🏻‍♀️. When I got home I realised that the test for all conditions has to by done by about 14 weeks (I’m 13 now), the 20 week only tests for Downs.

Zebedee1971 profile image
Zebedee1971 in reply to ray_of_sunshine_

Ring and ask for another one. I had mine at 14 weeks 2 days. And they booked me in with less than a weeks notice. No harm in asking x

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Zebedee1971

Thanks gonna call them now

Orla9298 profile image
Orla9298 in reply to Zebedee1971

I’m sorry to jump in - do they do the screening bloods alongside the nhs 12 week scan? It keeps sounding to me like you only get a scan and you have to go elsewhere privately for blood tests. I don’t feel like I could trust a scan alone. It’s my surrogate not me so it feels quite removed for me x

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Orla9298

Hey, if they could have checked the fluid in the baby’s neck at my nhs scan, then they would have done the blood tests too. They said blood tests alone would have not been of any use, as they need both details from the scan and bloods to provide the result/level of risk.

Orla9298 profile image
Orla9298 in reply to ray_of_sunshine_

Ah ok. I don’t know why but I’m really nervous to make sure that we get every bit of screening we can. Our 12 week scan is next Thursday at which our surrogate will be 12 weeks and 1 day.

I would agree you should surely be able to get another try?X

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Orla9298

When the midwife told me about all the screening options, I just thought why not, may as well know upfront. But the more I read, nothing is conclusive and its just about getting an estimation of the chance it could happen.

Yeh, I tried to call the antenatal dept this afternoon a few times but no answer. Will try again tmrw and if can’t get through will need to book privately. With private I just feel uneasy about finding the right place what appropriately qualified professionals.

Orla9298 profile image
Orla9298 in reply to ray_of_sunshine_

Where are you based?x

ray_of_sunshine_ profile image
ray_of_sunshine_ in reply to Orla9298

East Midlands

Livinginhope2019 profile image
Livinginhope2019

I had the same, baby was standing on its head and wouldn’t move! The NHS booked in for a quad blood test at 15 weeks and an abnormality scan at 19 weeks xx

Snez84 profile image
Snez84

The same happened to us and we really wanted to have the test. Not because we would look to terminate but more so we could plan our future. The consultant tried to say they wouldn’t offer another scan however, I pushed and pushed (with lots of tears) as it had taken us so long to get to where we were and they finally gave in and offered us another 3 days later. The measurements were easy for them to tKe second time round and all worked out ok xx

Gillis profile image
Gillis

Hi, I had the same thing they where unable to check the fluid as baby was in the wrong position and was wriggling around.They offered me a quads test at 16 weeks

ray_of_sunshine_ profile image
ray_of_sunshine_

Thanks everyone, don’t know what I would do without this network x

I got through to Antenatal this morning and they said they won’t do another scan on nhs but they could offer a private blood test called IONA (their version of the NIPT). It’s cheaper than the actual private companies I’ve come across due to the hospital giving it to their private arm at a reduced rate £350. The results are “usually” back working 5 working days.

I’m booked in for Monday, let’s see what happens.

Wishing you the best of luck with your journey’s xxxxx

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