Fertility Network UK
14,261 members23,459 posts

Update on TRAP twins

Am nervous about writing this post after last night but reading everyone's replies earlier I hoped it would be ok to post??

So we saw a professor at Birmingham women's today following our trap diagnosis. I feel like we understand it better now which helps a bit.

I have to go into hospital next Wednesday for a procedure which is terrifying me but if we don't have it done soon I will most likely loose our healthy twin too.

I am so scared that the choice we have made still puts our twin st risk and if something goes wrong I will never forgive myself but we don't have much choice.

60% chance of loosing baby if not done but 10% if we do.

Why do things never go to plan? Just feel like stamping my feet and shouting "it's not fair"

Hope everyone is feeling better following last night, so sad to read such upset 😭 xx

32 Replies
oldestnewest

I'll be thinking about you next week. You are so brave and incredibly inspiring. I'm rooting for you and your little one. Xx

2 likes
Reply

Thank you so much, brought a tear to my eye.

I really don't feel brave at the min, am completely terrified xx

Reply

I'm sorry that you've even had to question whether it would be ok to post. We should all support each other, good times and bad. We are here to support you no matter what. For what it's worth I absolutely think you made the right choice and you are giving your precious baby every chance. I'll keep everything crossed for you and your little family xx

7 likes
Reply

Oh my goodness you poor thing, I'm so sorry things are complicated for you. Really don't know what to say apart from I'm wishing you all the best and hope hope hope things go your way. Xxx trust in the professionals I guess... sending you love and hope xxx

1 like
Reply

Ps please don't feel nervous about posting - this is what we are here for xx

3 likes
Reply

Yes and when she's posting her good news we want to hear it!! Xx

6 likes
Reply

I don't ever feel like we will get good news, since bfp is all gone a bit pear shaped. I hope my little bean proves me wrong xx

1 like
Reply

I know it's hard. I hope you have a little faith in him/her, hopefully he/she may just surprise you yet.... 🤞 Xx

Reply

Awww hun. I hope it all works out sending big hugs and lots of love. You'll be in my prayers as all the ladies on here are. Keep positive easier said than done I know. Be brave and stay 💪 lots of love xx

2 likes
Reply

Hormomalmess I am so happy to hear from you. Was so worried when you initially heard about the TRAP issue.

Those stats look so promising, I will be rooting for you completely. This is such a journey to be on, you need all the support you can get and we are all here for you. So please please do not feel like you cannot post about your ongoing pregnancy issues.

Big love to you right now. XXXX

1 like
Reply

I can't imagine how you're feeling, it must be awful. On a positive note you have been armed with knowledge and have been able to make a very informed decision, as you say you have little choice in that decision with the info that has been provided. I believe you are doing the right thing and will be praying for a successful outcome for you 😘😘 xx

Reply

Oh Hun, I'm so sorry for everything you're having to go through 😓 what a difficult time. You're so strong and brace and we're all sending so much love to you and your little ones, lost and surviving ❤️💕 I hope everything goes as well as it possibly can for you. Thinking of you xxxxxx

Reply

Keeping my fingers crossed for u that all goes to plan and your bean keeps fighting xx

Reply

Thinking of you xx

Reply

It really isn't fair. I'm stamping for you. But also sending you enormous good wishes for your procedure. Rooting for you x

1 like
Reply

Good luck xxxxxx

Reply

I've heard really good things about gynae and obstetricians from Birmingham. Seems to be a centre of excellence for the lady bit area so at least have faith you are under good care.

Wishing you all the best x

Reply

Thinking of you and your baby Hun. Wishing you a successful op and a healthy pregnancy! 🤰 x o x o

Reply

Will be thinking of you ...🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼😘✨🦄✨

Reply

Will be thinking of you, I am sure you are in safe hands at Birmingham xxx

Reply

I am so sorry to read this, but there is still hope and you must cling on to that. I am sure the medical professionals will do their utmost to save your precious baby. You will be in my thoughts. Be strong and look after yourself xxx

Reply

Gosh what a stressful time for you. I'm praying for a successful outcome and hope to be able to read a positive post next week. xxx

Reply

Hi there, sad that you feel nervous posting after all you are going through! This site is precisely for situations such as yours where the journey is not a straight forward one so we can give you support and soon celebrate the success of your treatment. I'm glad to hear the docs can help to put everything back on track. You are bound to feel nervous about that but it sounds like the odds of success are really good and like you will be on the best hands. Will be thinking of you and wishing you all the very best. I agree it sounds like you are doing the right thing. Please keep us posted when you can. Lots of love xx

Reply

Very pleased to hear you have medical experts who are able to conduct this procedure. A very hard decision for you but as Diane said in an earlier post, trust that they know what they are doing. Xxx

Reply

Thinking of you 💕 Xx

Reply

Just wanted you to know that I'm thinking of you. It must be such a difficult time & having to make difficult decisions on top of that. I'm sure you're in good hands at Birmingham & will do all they can. Take care of yourself & little bubba xxxx

Reply

Oh what a worry for you! Just want to say that Im thinking of you and will have everything crossed for you next week!xx

Reply

I'm so glad you posted an update - I've been thinking about you and wondering what was happening. For what it is worth it absolutely sounds like you have made the right choice and those stats are really good. I totally get why you want to stamp your foot - it ISN'T fair at all. Thinking of you and sending hugs xx

Reply

Good luck, in times like this all you can do is trust the experts to know what's best to do. Please let us know how it goes.

Reply

Ive just been catching up on your previous post having read this title and unsure what the trap bit was all about. What a worry for you but hopefully you have been referred to the best care possible. I'm thinking of you and sending love

Reply

Trap means that there is still blood flowing to my deceased twin before my healthy twin gets it and basically it puts healthy twins heart under a lot of pressure as it's pumping for 2. The deceased twin is still growing too which adds to the pressure. If we don't have the procedure my healthy twins heart will probably fail 😥

Thanks for your thoughts xx

Reply

Is it pretty rare? I've never heard of it. You think the infertility is the complicated bit but the stress doesn't end just because you get a bfp!

Reply

You may also like...