Update on TRAP twins

Am nervous about writing this post after last night but reading everyone's replies earlier I hoped it would be ok to post??

So we saw a professor at Birmingham women's today following our trap diagnosis. I feel like we understand it better now which helps a bit.

I have to go into hospital next Wednesday for a procedure which is terrifying me but if we don't have it done soon I will most likely loose our healthy twin too.

I am so scared that the choice we have made still puts our twin st risk and if something goes wrong I will never forgive myself but we don't have much choice.

60% chance of loosing baby if not done but 10% if we do.

Why do things never go to plan? Just feel like stamping my feet and shouting "it's not fair"

Hope everyone is feeling better following last night, so sad to read such upset 😭 xx

32 Replies

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  • I'll be thinking about you next week. You are so brave and incredibly inspiring. I'm rooting for you and your little one. Xx

  • Thank you so much, brought a tear to my eye.

    I really don't feel brave at the min, am completely terrified xx

  • I'm sorry that you've even had to question whether it would be ok to post. We should all support each other, good times and bad. We are here to support you no matter what. For what it's worth I absolutely think you made the right choice and you are giving your precious baby every chance. I'll keep everything crossed for you and your little family xx

  • Oh my goodness you poor thing, I'm so sorry things are complicated for you. Really don't know what to say apart from I'm wishing you all the best and hope hope hope things go your way. Xxx trust in the professionals I guess... sending you love and hope xxx

  • Ps please don't feel nervous about posting - this is what we are here for xx

  • Yes and when she's posting her good news we want to hear it!! Xx

  • I don't ever feel like we will get good news, since bfp is all gone a bit pear shaped. I hope my little bean proves me wrong xx

  • I know it's hard. I hope you have a little faith in him/her, hopefully he/she may just surprise you yet.... 🀞 Xx

  • Awww hun. I hope it all works out sending big hugs and lots of love. You'll be in my prayers as all the ladies on here are. Keep positive easier said than done I know. Be brave and stay πŸ’ͺ lots of love xx

  • Hormomalmess I am so happy to hear from you. Was so worried when you initially heard about the TRAP issue.

    Those stats look so promising, I will be rooting for you completely. This is such a journey to be on, you need all the support you can get and we are all here for you. So please please do not feel like you cannot post about your ongoing pregnancy issues.

    Big love to you right now. XXXX

  • I can't imagine how you're feeling, it must be awful. On a positive note you have been armed with knowledge and have been able to make a very informed decision, as you say you have little choice in that decision with the info that has been provided. I believe you are doing the right thing and will be praying for a successful outcome for you 😘😘 xx

  • Oh Hun, I'm so sorry for everything you're having to go through πŸ˜“ what a difficult time. You're so strong and brace and we're all sending so much love to you and your little ones, lost and surviving β€οΈπŸ’• I hope everything goes as well as it possibly can for you. Thinking of you xxxxxx

  • Keeping my fingers crossed for u that all goes to plan and your bean keeps fighting xx

  • Thinking of you xx

  • It really isn't fair. I'm stamping for you. But also sending you enormous good wishes for your procedure. Rooting for you x

  • Good luck xxxxxx

  • I've heard really good things about gynae and obstetricians from Birmingham. Seems to be a centre of excellence for the lady bit area so at least have faith you are under good care.

    Wishing you all the best x

  • Thinking of you and your baby Hun. Wishing you a successful op and a healthy pregnancy! 🀰 x o x o

  • Will be thinking of you ...πŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ˜˜βœ¨πŸ¦„βœ¨

  • Will be thinking of you, I am sure you are in safe hands at Birmingham xxx

  • I am so sorry to read this, but there is still hope and you must cling on to that. I am sure the medical professionals will do their utmost to save your precious baby. You will be in my thoughts. Be strong and look after yourself xxx

  • Gosh what a stressful time for you. I'm praying for a successful outcome and hope to be able to read a positive post next week. xxx

  • Hi there, sad that you feel nervous posting after all you are going through! This site is precisely for situations such as yours where the journey is not a straight forward one so we can give you support and soon celebrate the success of your treatment. I'm glad to hear the docs can help to put everything back on track. You are bound to feel nervous about that but it sounds like the odds of success are really good and like you will be on the best hands. Will be thinking of you and wishing you all the very best. I agree it sounds like you are doing the right thing. Please keep us posted when you can. Lots of love xx

  • Very pleased to hear you have medical experts who are able to conduct this procedure. A very hard decision for you but as Diane said in an earlier post, trust that they know what they are doing. Xxx

  • Thinking of you πŸ’• Xx

  • Just wanted you to know that I'm thinking of you. It must be such a difficult time & having to make difficult decisions on top of that. I'm sure you're in good hands at Birmingham & will do all they can. Take care of yourself & little bubba xxxx

  • Oh what a worry for you! Just want to say that Im thinking of you and will have everything crossed for you next week!xx

  • I'm so glad you posted an update - I've been thinking about you and wondering what was happening. For what it is worth it absolutely sounds like you have made the right choice and those stats are really good. I totally get why you want to stamp your foot - it ISN'T fair at all. Thinking of you and sending hugs xx

  • Good luck, in times like this all you can do is trust the experts to know what's best to do. Please let us know how it goes.

  • Ive just been catching up on your previous post having read this title and unsure what the trap bit was all about. What a worry for you but hopefully you have been referred to the best care possible. I'm thinking of you and sending love

  • Trap means that there is still blood flowing to my deceased twin before my healthy twin gets it and basically it puts healthy twins heart under a lot of pressure as it's pumping for 2. The deceased twin is still growing too which adds to the pressure. If we don't have the procedure my healthy twins heart will probably fail πŸ˜₯

    Thanks for your thoughts xx

  • Is it pretty rare? I've never heard of it. You think the infertility is the complicated bit but the stress doesn't end just because you get a bfp!

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