Nk cell results : Got my nk cell test... - Fertility Network UK

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Nk cell results

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Got my nk cell test results earlier and the normal percent is 0.05 mine is 25.59 so they explained I've got an aggressive womb so now they will need to put me on steroids am so gutted as just wanted it to be clear sick of doctors keep finding more and more with my messed up body having such a rubbish night πŸ˜” xxxxxx

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Hollibob profile image
Hollibob

Did you have a biopsy or blood tests?

I know it's annoying and may feel like it's never ending, but at least you have something to work with and maybe a reason that will help you get your dream x

in reply to Hollibob

Got a biopsy huni was very sore it really is annoying 8 years of keep finding more and more wrong with me hope ur well hun xxxxx

Hollibob profile image
Hollibob in reply to

I'm not too bad thanks.

I had the NK blood test as that particular Dr believes that it's more accurate than a biopsy where the lining can change...

The results didn't show anything, so not sure if it's worth paying to have the biopsy or not...

in reply to Hollibob

Awww really hollibob they didn't even mention about getting blood took when I was there so the bloods would have been better and defo not painful xxxx

samrakkar profile image
samrakkar

Each consultant and doctor has their own opinions on what's more accurate.

But babe look at it as a positive. .. also they should be putting you on intralipid infusions as well as the steroids so question them about this x

in reply to samrakkar

Yeah samrakkar it did say when required about it about a drip or steroids but the doctor last night didn't mention it at all u think I should email them xxxxx

samrakkar profile image
samrakkar in reply to

Yea babe definitely as you need both x the drips suppress the immune system so they should be having you on both. When's transfer? X push to have both as when I've spoken to the nurses who did my infusions they said it's them that works the magic... x

in reply to samrakkar

I've to phone with my may period will need to phone or email and say to them before go back in may so have everything they need to no xxxx

Sam101 profile image
Sam101

If you dont mind me asking what was your reason for having the test? Are you paying privately or nhs? Hope you dont mind me asking xx

in reply to Sam101

I just wanted to rule everything out sam101 as had my 3Rd fail and was put on a waiting list to get my tubes removed so didn't want to go back just for another fail few girls on here told me about it as my hospital never even mention anything about never even new there could be another problem as thought been tested for everything but they don't do it in Scotland yet and I paid private for it get my treatment on the NHS tho and not at all hun can ask me anything at all xxxx

mama_ejima profile image
mama_ejima

Hello, Lynsey you have taken the step in the right direction. High NK killer cells are often responsible for recurrent miscarriage and IVF. Autoimmune disorders and stomach inflammation are often the culprits. It is important that you try to reverse the inflammation in your body with organic foods.

in reply to mama_ejima

Am so sorry mama_ejima I sound so thick but don't really no wot alot what ur saying I really can't take alot in as mind goes blank so you defo think I should change my diet an such a fussy eater that's the only problem xxxxx

Cmat profile image
Cmat

Hi, do you mind if I ask what the cost is? I was thinking of going down this route as I'm convinced it's linked to my autoimmune thyroid issues (my body reacts to everything!!) but I've heard it referred to as 'pseudoscience' too and don't want to waste money I could save for IVF- it's so confusing!! If you're going down the food route I can recommend 'the autoimmune paleo cookbook' which I've found very useful xxx

mama_ejima profile image
mama_ejima in reply to Cmat

Cost varies depending on location and clinic. I am seeing an experienced Doctor in central London. Test can cost anything from Β£500-Β£1500. Does not include consultation.

in reply to Cmat

Hiya cmat it was only Β£360 which I thought was great as did hear could have been alot dearer am still so confused with it all as I don't take anything in my mind goes blank my partner has to listen to everything so when people mention it or say things they have red I don't no wot to say so u think I should change my diet aswel??? u defo should maybe get the tests done just to rule it out hun xxxxx

Cmat profile image
Cmat in reply to

Thanks Lynsey, I will look into it. I don't know how much diet helps, have just heard that paleo can help autoimmune conditions generally. I have loads of food sensitivities and allergies which I figure is my body overreacting to stuff so that's why I try to eat unprocessed food, and I have endometriosis so there are things like soy that are supposed to aggravate that- you may not need to if you don't have those problems. It's great your partner takes it in, mine is lovely but not one to take in any info, I have to keep all the notes and put stuff in his diary lol! Xxx

fertmag profile image
fertmag

Hi Lynsey86 I hope alot of the comments have helped you already. Dont be too downheartened that they have found something else wrong - having NK cells is a big reason for not getting pregnant, so this could really be the answer for you. There's alot of information around to find out more - I read the book 'Is your body baby friendly?' by Dr Alan Beer when I had an early miscarriage after my 2nd ICSI cycle for unexplained infertility, which led me to a miscarriage consultant. I was convinced I had sticky blood (thrombophilia) but the tests came back negative. I was gutted!! I really wanted them to find something so it could be treated & I would have a baby. Luckily I was allowed to do the treatment as if I did have an issue and on our next ICSI cycle, we were successful & our daughter is now 5.

There's still a divided opinion as to whether your immune system affects fertility and many doctors dont mention it, this is where doing your own research is really important and these forums are very helpful. We told our clinic in Spain that we were doing this treatment for our next cycle and they were fine about it. They got a good result to!!

Good luck with your next cycle xx

Hiya fertmag yeah my partner said it's good they have found something and can try fix it but 1. My partner said it's not 100% as it's like research and 2. One the girls who told me about it has said should be on a drip aswel as the steroids but they didn't even mention it am so confused with it all so does that book u red fill u in with all this as I thought it was my immune system but when got there the doctors told me it has nothing to do with immune system at all its all about the womb sounds like u have been thrgh alot us that's amazing u have ur perfect wee princess ☺ thank you very much for ur message ino to some 30 isn't a bit deal but to me it is 8 years of hell just want to feel my wee miracle baby sending some love β™₯ xxxxxx

samrakkar profile image
samrakkar

babes dont get bogged down with diet!

just take the correct meds 3 lots of intralipids and prednisolone steriods thats all you need x

samrakkar profile image
samrakkar

hfea.gov.uk/fertility-treat...

Milly_Moo profile image
Milly_Moo

Hi all, I haven't had the killer cell test as I had a laparoscopy and started down Reg immediately after so wasn't doing any ovulation tracking, plus didn't want to be prod and poked again so soon after my op. However, my consultant has prescribed me the drugs for this which isn't a drip, steroids and another tablet for my second cycle to just be sure I have every chance. If we fail this cycle (second ICSI cycle) then I will definitely get tested for it to know for sure. It is definitely worth knowing everything. I too feel like it's never ending news as I was told my Fallopian tubes were fine for 3 years to be operated on 3 weeks ago to tell me one is blocked and the other isn't straight and has kinks in it. How can we not find these thing out sooner. I didn't even know this before my first cycle... Killer cell test should be standard at the beginning of process to save us some emotional strain. XxxX

samrakkar profile image
samrakkar in reply to Milly_Moo

your totally right it should be standard procedure to check! if i knew this 15 years ago i'd prob have a football team by now. Yes sometimes they will prescribe the steroids as a precaution. However, if the cells are elavated its the intralipids that work the magic.

it's just crazy the amount of people i know online who have had miscarriages or unexplained fertility - implantation problems and by taking these simple drugs that have the elavated cells that have got pregnant is mad! x

baby2016 profile image
baby2016

I've also been diagnosed with high nk cells, after also having the biopsy. Did you gave yours done at coventry? As that's the same price I paid. I am shortly to start ivf after having both my tubes removed due to hydrosalpinx in both tubes after 2 e ctopics and 2 miscarriages. With regards to my nk treatment I have to start taking a steroid on the day of transfer to dampen down the nk cells as well as injecting blood thinners for sticky blood syndrome. I was told lipids make no difference, just the steriod drug for me and I trust what I've been told as they are the lead on implantation issues and are heading up the soon to be opened Tommy's early miscarriage rssearch centre and were the doctors who recently announced their break through findings in relation to implantation issues. It is all so stressful isn't it, however weirdly I feel the best I have in a long time now my tubes are removed! Haven't got to worry about another tubal ectopic which is actually a huge relief x

in reply to baby2016

Awww so sorry u have had been two miscarriages hun πŸ˜” yeah was Coventry we went to yip I've just to get steroids aswel I've had one tube removed and one clipped so I really hope this is it for us both hun when do u start ur treatment again xxxxxx

baby2016 profile image
baby2016

Aww nice to know there's someone in a similar boat to me :) I only had my op 3 weeks ago, next appointment mid April, if all good I can start end of April or may need to wait till May. It will be the first time i've tried ivf, all my previous pregnancies were natural, but it's likely the fluid in my tubes caused my miscarriages. I'm 38, 39 this year so no time to waste really. Started reflexology last week with someone who specialises in ivf, prepared to try anything, as i'm sure we all are. When do you start yours? X

I had my operation 4 weeks ago how u feeling after urz hun aw not too long to wait then hopefully sooner rather than later well I've to phone up with my may period and will all start over again had 3 failed attempts already am so worried tho as they have used 3 of my best embryos and another one didn't make the thawing stage so the ones I've got left aren't the best that they also won't make thawing stage xxxxx

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