I just joined a few minutes ago.
I got diagnosed about 3 years ago, but I wasn't told by the doctor. I found out when my second opinion was reviewing the surgery records from my fibroid being removed. It has been a tough journey.
My husband and I have been together 7 years and married for 3. This has been very difficult for us, straining to say the least. My patience doesn't exist when I am having a "bad ouchie day" as we call it around here.
For most of this disease, I have had no idea. Just trying to get each symptom resolved individually, because every doctor I went to told me everything was in my head. I finally started the Lupron shot 7 months ago, and have found the most SWEET relief of my lifetime. That is a birth control shot that can either be done in 1 month or 3 month set.
My husband and I have been actively pursuing my getting pregnant. The endometriosis has completely blocked my tubes inside and out, along with my uterus. We have discussed adoption, started Invitro but are having issues with funds, and even discussed having my uterus removed recently. It seems though, our desire is in having our "own" baby as naturally as we can, which means INVITRO.
My ultimate dilemma and point, is I always thought having a baby would be easy, and its proving to be one of the hardest decisions of my life. As I mentioned before, the Lupron has brought more peace and relief to my marriage than we have been able to experience in the past 6 years. Relief we needed. And now, we have an appointment with our second attempt at starting Invitro (since we had been undecided and put things on hold), and I am on the second day without the overlapping Lupron shot.
I am terrified at the process. The process of coming off of the shot, everything I am going to experience at once (all 10 horrible symptoms) while we wait for the Lupron to completely leave my system and start everything involved with invitro. I am terrified of the pain, the lack of sleep, the time I will most likely miss from work, the day to day building of pain, the strain it will then cause on our relationship, because my patience goes from 200% to -10% and you notice pretty quickly.
Sigh....I am scared and there is no way around it, we want a baby and this is how we want it. Our thoughts and what we have been told is that getting pregnant will actually help with the endometriosis and may resolve it completely.
I just feel so alone in this, and how I feel, and how invisible the symptoms are, and how I recently found relief after so many years and that is no longer an option, because regardless the shot is only meant to be taken for 6 months before you start to face Osteoporosis. The doctor put me on oral Estrogen to counteract that. I still find myself wanting at least 1 more month of Lupron.
I don't know what I expect, I just know I have to talk about it. Anyone going through anything similar or have thoughts, or suggestions?
