Yuck! I am heading into my 3rd biopsy (Im apart of a drug research and have NASH, f3 s3) and not very excited...my last one the Dr that did it butchered me! I literally could not walk for 4 full days! I bled a lot and it hurt like hell to breathe...I told my Dr. I will walk out if that Dr. is doing my bio...I refuse to have her touch me ever again...I am so scared bc of how bad she jacked me up, I can still feel the pain to this day when I think about having it done...Please dont get me wrong, the first one I had was easy as pie, in and out in less than 20 mins, yes please!! The second they didnt even give me the calming meds that I got the first time then said I refused them...ummm...who in their right mind would refuse drugs of any kind going into a procedure of any kind??? This time I will make sure they give them to me...that time they had to keep stopping due to my heart rate and blood pressure going up so high bc I was so scared, I laid in that bed for an hour before she even came int he room...then she did everything so sloooow...and kept showing me the tools, thats when my heart rate skyrocketed...they had to stop and calm me down, I also kept having then had to give me 2 different pain meds...omg it was a mess!! I call her the butcher, its my inside joke with my Dr. Needless to say...I am freaking the eff out, I am scared to death that its going to hurt like that again...I wont be able to handle it...I am to old to feel like that, laying in bed not being able to move or get up alone to go to the bathroom or bend to do what I need to do...ugh!
Regardless, I know I have to have it done...1 bc Im in the study 2 I think Im in worst shape than before...I have had more intense pain, not to mention I am retaining water like a mug...my energy level...haha what energy level...I just all around feel like crap all the time...I hate it, Im to young to feel this old...Anyways, I just had to get the butcher off my chest...thanks for listening yall. Good luck to all and stay safe...
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Purmaple11
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Well, that all sounds pretty horrific and I can understand why you are feeling so anxious about this procedure. It’s a challenge not to feel ‘victimised’ when something so horrible happens to us.
And despite these procedures being daily work events for medical staff, to us it’s a huge event. If you think you might have a bit of PTSD from the incredibly painful biopsy you had last time, is there someone with whom you can talk this through? This can help to dilute the power of the flash backs you seem to have to the pain.
I admire your commitment to the research programme! It must be very motivating. And it sounds like a great plan to be ready to ask for the meds and for a different doctor if the previous one shows up. You’re an equal participant in the procedure. So if you don’t agree with something you’re right to speak up. Good luck and please let us know how it goes.
So sorry you have to go through that. Prayers for you. I know that handling pain is different for everyone, but that does sound horrific. Hope you refuse it, if you get the "butcher" back. There are doctors that know what they are doing and there are doctors who suck! Is there any chance you can be put out for this procedure? I mean completely out. I would look into that because of the level of pain you experienced. All the best of luck to you and keep us posted as to the procedure. God bless.
I'm on a research too, however I feel great. I was exhausted for a while and in the beginning I swelled and held a lot of water, but I found I was very low on iron and they put me on iron supplements which has helped a lot. I've had very little pain. I had it all the time before I started, They just raised my dosage and I have had a little pain with it, but not unbearable. I've had 2 biopsies. 1 with a local so I didn't care, but it hurt really bad and they said more drugs and I got them. This last time they put me out, but I lived with a lot of pain for about 3 weeks. A lot of acid reflux and burning afterwards. They told me they put a sealer in there to block the hole they made and that sometimes leaks out causing all the discomfort. I'm fine how and it will be 6 months until I have my next one. I have a fiber scan this week. Good luck with everything. I was diagnosed in 2018 as stage 4 fibrosis with cirrhosis. Good luck.
OMG! You poor baby! When biopsy was mentioned to me, they said it was done at hospital under anesthesia. I got the impression it was like a 10 min thing with twilight type anesthesia. Am I wrong?
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