Living with Fatty Liver and NASH
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Will patients be the victims of the opioid crisis?

Will patients be the victims of the opioid crisis?

It's ridiculous to expect chronic pain sufferers to just "accept" the pain so addicts, as sad as that situation is, don't get their hands on pain pills. Pain medications aren't being sold by the people who rely on them for a decent quality of life. There's absolutely no reason to force people with debilitating pain from a chronic illness to suffer.

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I totally agree, I am in constant pain between my Liver and Fractures in my back. No surgeon will operate on me due to my thin Blood and alot of issues came from wrecks many years ago. They tell me don't take Motrin, Aleve, Advil, Asprin, Tylenol or Antiinflammatory or Arthritis Medicine, what does that leave? Oxy. My primary prescribed me 40 pills a month. My Liver Doctor put me on anti triptyline which seemed to help at first but not anymore and the precautions say Do Not Take if you have Liver Disease! I've told my Doctors I would rather Live A shorter Life in Less Pain than Longer Suffering EVERYDAY! Many Doctors don't believe you can have pain with this Disease, Well that's how I discovered it in the first place!

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I totally and completely agree with you I have had 5 total knee surgeries The Replacements and on one knee I have to have surgery again because it still is not working right it slips out of the socket constantly it caused me so much pain I wake up at night screaming and what every time I stand up I have to go through the pain of it going back into the socket before I can stand and walk I never know when it's going to slip out is so painful it makes me cry my eyes are swollen and have been swollen for a couple years now I also went through breast cancer the damage Done by the chemo and the radiation is so horrific that it's hard to even move my arm without my pain medication I would not have a life I would simply ask someone to shoot me at least with my pain medicine I can have some kind of life it doesn't make me high I just simply eases my pain patients should not suffer because of junkies I do not sell my medication I need it myself if it's taken away for me I probably will just cease to exist okay put the Junkies in jail believe the patients are in pain and leave them alone I still have my family I thank the Lord above for that to help me with daily things that I cannot even do anymore without my medicine I would be afraid of what might happened to my life I have been taking my medication for 8 years now I also have other health issues it's the only thing that helps me I am also on blood thinners and cannot take Aspirin because I'm allergic to it all I can say is please pray for all of us patients who really need their medication this is no joke isn't fair to the patience God be with us all amen

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I have to speak up my heart is aching /Please understand with empathy ,don’t call a disease “a junkie “, Yell at Big Pharmaceutical Scream at Docters for selling ,over prescribing pain meds ,my point is I have a beautiful ,loving college high honors graduate ,would take good care of me when sick ,got prescribed pain meds (medical )Gino reasons got hooked and this time last year well let’s just say from shame &guilt almost died ,flatlined often ,now clean sober 8 months !/God forbid if I lost her ,/Addiction is just that a Disease of mind body Sole that does not belong in jail they belong innhospita recovery !/Peace for all 🙏

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Hi Tracey

I must apologize to you for writing that word. I really do understand that addiction is a terrible disease and as a country, we are just completely wrong headed about it. I wrote that after corresponding with a caregiver whose love had committed suicide after the doctors refused to prescribe pain meds for fear the feds would get them. I was not thoughtful at the time and I'm sorry. I am happy for you that your daughter survived. Many do not but taking a sledgehammer to the care of people dying of liver failure is just wrong.

Wayne

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Tracy please forgive me if I put in my letter the word Junkie yes I do understand that it is a disease. And these people do need help hospitalization to get off these medications. I am just very angry because of all the pain I have been through. There has to be a happy medium somewhere my heart goes out to you or anyone with addiction. There is no excuse for taking something that doesn't belong to you. The Bible says Thou shalt not steal but it also says we must forgive our wrong doers. I protect my medication I keep it locked up so that this does not happen to me. I do not have a lot of people in my life so that narrows it down for me. I'm just trying to say that without my medication I would not have a life at all I have grown children grandchildren and great-grandchildren that I want to spend my life with and enjoy my time with them. As soon as I have recovered from this surgery my 5th one now on the same knee thank God I got a better different doctor to fix me the right way I am not in as much pain as I was. I plan to gradually taper down and get off this medication. I do not plan on taking it for the rest of my life. I will not let anything control me like that. God has control of my life not me I pray each morning when I wake up I pray in the afternoon and I pray at night God gives me all the strength and courage I need. God bless all of us who are in pain and in need of medications also God bless those who are not in pain but live with addiction. Those who live with addiction I've got to talk to God and come to agreement just stop taking the medication if they are not hurting and go seek medical help. Stop taking it out on the people who are in pain pain can be so bad that it can kill you if you don't have something to help you control it. Thank you all of you for your responses respectfully Leora

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Hello Nash 2, I completely agree, I am in SO much Pain in Liver and Spleen! My Liver Doctor will only give me amitriptyline for my pain. My Primary prescribed me 3, 1/2 pain pills a day, I just saw him and he denied upping the mg or dosege because the only kind I can take is without Tylenol which is OXY! He said I would need to go to pain management even though I have pain contract with him! I need back surgery and am growing lumps all over no one will touch me because my blood is so thin. I had dental surgery and thought I would have to go to ER to get blood that night. I feel people with this Disease are being treated as if they deserve the pain and brought this on themselves!

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I agree, grouping patients in with junkies is wrong. Ive already seen how this is unfairly effecting people close to me and it is heartbreaking and infuriating at the same time.

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We are criminalizing really sick people. The fools running this program should be entertained with something really painful so they might learn something. Disease victims don't do drugs for recreation. I don't know what we do but we are seeing it everywhere. Sick people having their meds cut back or eliminated in name of the war on drugs. Torture is becoming a required part of medical care I fear.

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They “are suck &suffering addicts !/The term “junkie is so 1960’s /Wake Up world they did not do this ‼️overprescribing ,dr kickbacks ,Pharmaceutical kickbacks if you “think “the choose to be an addict ?/Then it’s time to educate yourselves on “the Disease of addiction !,90 percent of “Opioid “deaths are not from pills /Heroin ‼️

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Sick ,anyway if we complain about this your wasting your time ,let’s focus on supporting eachother with solutions ,”because “That’s all we really have “If we put are energy into “how can we make a difference,now,for the future patients that’s progress not perfection !

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You are right. We do what we can for ourselves, but our goal is to make a difference for the future. If we can pull the future to us fast enough to help us personally that would be the best, but our screening project is a gift to my children since we have a familial trait for disease.

fattyliverfoundation.org/pi...

Wayne

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my own doctor told me I was free to find another provider when I tried to explain that my current meds were not enough to deal with the pain. There have been days where the thought of enduring even one more night in agony was enough to make me contemplate suicide. I know Im not alone in this and that makes me even more angry. People are suffering needlessly. it's wrong.

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Sadly, your thoughts of suicide are not isolated. Suicide as a result of liver disease is common enough that it is recorded in the statistics. Very serious issue. It is among the reasons why we are patient champions for early screening so that so many won't end up fighting those challenges. There is a lot of research and help is coming but slowly because of the need for clinical trials.

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