It is unsettling when the political warfare that has gripped our country in recent years spills out of the halls of Washington threatening vast change. As a patient community, we are concerned about what the changing times mean for us as many of the details can represent life and death for us. The politicians and the other clickbait artists search for triggers that can generate a viral message, constantly driving our concerns. I thought it might be useful to take a step back and consider where we stand today.
The sky is falling -- we are doomed -... - Living with Fatty...
The sky is falling -- we are doomed -- well maybe not
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I think we should keep politics out of these forums because there are always 2 sides
Politics affect liver patients directly. Access to healthcare and insurance, funding for medical research, policies that make healthy living more expensive and lead to higher rates of liver disease, all flow directly from politics. The whole point of advocacy is to affect policy so that it addresses the problem.
I am a historian. I have seen (and taught about) this scenario. The drugs that we see on the horizon are the result of years of dedicated research. That research is in imminent danger of ending as NIH grants are blocked (the courts can declare this illegal, but without Congress standing up to stop the coup, there is no way to enforce those orders.)
The VA is being gutted. Federal agencies from the CDC to the FAA are being decimated. Agencies that are tasked with ensuring the safety and welfare of all Americans are being dismantled. Medicaid, Medicare, and Social Security are being led to the chopping block as of today.
This is not "sky-is-falling" paranoia. This is the reality on the ground in the U.S. Your personal information including SS#s (and most likely banking info) has already been downloaded.
All of these things are reality. The courts are holding as best they cannot do it alone. We are the only ones who will save us. They have already started coming for immigrants. They are already attacking trans kids. If you do not believe that liver patients (and the ability to gouge us for exorbitant prices for any drugs that manage to make it to market) are not on that list (along with just about everyone else) then I would direct you to some actual history. The playbook has been written and is being followed meticulously.
Stand up and use the voice you have. It is the only thing that will save us. This is not a game. This is an overthrow of the U.S. government. The oligarchs don't care about the progress in liver disease treatments unless it can make them an obscene profit.