Desperately seeking help please.
Marybrinck12 months ago
My name is Rob I'm looking for a cure for this disease for my wife,
We are located in the United States in Sparta, N.J. She needs help...
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nish10133 months ago
I had few consultations from Gastroenterologist . Did a sigmoidoscopy plus more stool , blood tests etc , all were clear.She didn't find an...
nausea for two weeks
Stache5 months ago
I"ve tried over the counter "cures" to no avail (Benadryl, ginger root, etc). There must be an underlying problem. Any ideas?
Need some help with my bloodwork!
Albert0965 months ago
There's a couple things I notice about my recent bloodwork!
My bad ldl cholesterol was a 112.
My thyroid is a 4.2 (tsh) with t4 being normal r...
Newly diagnosed with eosinophilic oesophagitis.
Hiddena year ago
I have had problems with eating all my life. I have never been listened to until this year. I am now 50 years old and it's only because I ha...
Link between EGID and anxiety disorder or nervous tremor
Janejacob2 years ago
My son was diagnosed with this at Great Ormond Street or Eosinophilic infiltrate was found in an endoscopy and colonoscopy and the ...
high Eosinophil count on blood test
Dramlouie3 years ago
I have hypothyroid and was just looking at my recent blood test which the doctor said was normal but I picked up a copy recently and noticed...
Advice and help needed
Hay833 years ago
I'm in need of some help , my 18 month old was diagnosed with EoE 12 months old . He under alder hey but no one wants to help or gives us th...
tjb19863 years ago
I suffer with a condition stated above which is rare and at the moment very unwell I am in the uk does anyone else suffer with this rare con...
My 11 Year Old has Eosinophilic in intestine, illeum, bowel. Never heard of this disorder before. 28 day's hospitalized. Lost 15 lbs.Help
cooper263 years ago
Ours started First weekend in October. We have been in and out of hospital 28 days. She's lost 15+ pounds, barely can eat, has horrible pain...
Update on ways to link with FABED
shellsteve743 years ago
To contact FABED or to join there are a few ways:
new to the site looking for other people that have a condition called eosinophilic gastroenteritis which is rare
I have been diagnosed with eosinophilic gastroenteritis which is a rare condition ,which effects mostly the small bowel,inflammation in the...
shellsteve744 years ago
Due to unforeseen circumstances we at FABED have not been able to give the time which is needed to do the work we need to do on the healthUn...
Hi all. I've just joined as my 3yr old son has just been diagnosed with eosinophilic esophagitis. Is there a closed group I can connect to?
LKav4 years ago
All help much appreciated.
My child has 'suspected' Eosinophilic Disorder. Mostly used to be 'gut trouble'. Now having loads of skin infections. Anyone else the same?
Feedingmyintolerantchild4 years ago
Independence - or lack of. (Personal Blog post.)
Hidden4 years ago
From The Recipe Resource ( thereciperesource.blogspot.... )
We often discuss behaviour and allergies with EGID, but this is a different slant...
How to meet someone locally that is in the same boat
lisalam5 years ago
I am wanting to meet local families that are in the same boat as we are. i have two daughters that have Eosinophilic gastritis and colitis, ...
Does the oesnophillis cause dispepsia, apart from the symptoms of weezing.
mrcav5 years ago
I am 62 years old. around 2yearsback I was found that i am affected with an oesinophillis count of 1600 . prior tothe identifying by pulmon...
When your child has a flare up do they vomit a lot of yellow stomach bile?
katiejanec5 years ago
Dieticians appointment, what to ask, suggest and say no to?
outofherdepth5 years ago
Hi, I'm a mum of 2 EGID sufferers. My little boy whose almost 4 and my little girl whose 19 months.
My daughter has had some major set bac...
Part One About us and our three children with Eosinophilic Disorders.
shellsteve745 years ago
Well where do I start? I am Michelle aged 38 and Married to Steve also 38, we have 3 children Josh 15yrs 10 months, Callum 13yrs 8 months an...
Has anyone taken their child abroad with Eosinophilice Discorder?
alfiep85 years ago
We last took our son when he was 2 years old and after a couple of days we was sent home because he was so poorly. He picked up a bug on the...
Allergies, Constipation and Motility (and Movicol !)
Hidden5 years ago
If you want the version with pictures, visit thereciperesource.blogspot....
When you think of constipation, it is usually not only the ...
1 Reply1 Like
How many Eosinophilic people have bladder issues also.
Have questions about Eosinophilic Disorders?
Use this section to ask anything!
Share your story
One of the best ways for people with health conditions to connect with each other it to share your story - the experience you've been throug...
Allergies, Intolerances and Autoimmune Diseases
When most of us think of the word "allergy" we are thinking of a systemic immune response, or at least an immediate and visible reaction. Fo...
4 Replies1 Like
How does your school age child cope at school with diet restrictions?
Won't eat in public? Always eats separately, school make an effort to cater etc?
What is EGID?
Eosinophilic (E-o-sin-o-fil-ik) Disorders Information.
We encountered the world of EGID via Reflux symptoms initially. My whole family on m...
How do you/ your family cope with a child been on a restricted diet?
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