new to the site looking for other people that have a condition called eosinophilic gastroenteritis which is rare

[tjb1986]

I have been diagnosed with eosinophilic gastroenteritis which is a rare condition ,which effects mostly the small bowel,inflammation in the tummy and very sick and tired.I was wondering anyone on this site suffers with this as myself,my brother and mum have this.It wold be helpful to discuss different medications etc and compare notes with someone that knows what you are going through as this condition isnt just physically draining its also mentally draining,I have to be careful with everything i do,Im on alot of medication etc .hope to talk to you soon take care _ tammie

[shellsteve74 FABED]

We have over 300 members in the UK with a form of Eosinophilic Disorder. Children and adults included. I myself have EoE and have three children with Egid , All on various medications and restrictions. Two of them were tube Fed but when one of them turned 16 he removed his tube. A lot of our members chat on Facebook and the group's offer huge support to each other. We have been dealing with this condition for nearly 18 yrs, so more than happy to chat.