Bedtime wetting

[Alice-Carousel]

My son is 11 and we are under the incontinence team. During lockdown his bedtime wetting had gotten to the point of being nonexistent.

Now he is back at school he started wetting again. It's now back up to daily again

The incontinence team just tell me, go look at Eric. Well I did already.

Obviously use mattress protectors, pads. We have an alarm system as well. I've been following everything on drinking.

No improvement.

What am I meant to do when the incontinence team won't even help and seem to prefer to blame me (when it's clearly not my fault if he was dry during Lockdown)

[StellaA]

I've had very mixed experience with out continence service, my granddaughter is the same age as your son and they couldn't have been less interested in actually helping her.

She was prescribed desmopressin, which done absolutely nothing, after that she was given an allowance of 2 nappy type pads for her bedwetting, but nothing for her daytime wetting.

I had to deal with the adult incontinence service for myself and had totally the opposite experience from the children's services.

I had a fall and had bad bruising and numbness in my pubic area, I lost all blader control for a few days and am still having problems with that.

I was soaking through tena ladys and desperately needed heavy incontinence pads but after a weeks of waiting for appointments and doing a bladder diary they suggested doing pelvic floor exercises, by then I still had no feeling or control and they wouldn't give me pads until I had tried other paths.

Eventually they gave me an allowance of absorbent pants, that are awful bulky and uncomfortable, I'm still trying to get a more suitable product supplied but have ended up just getting what I need online and paying a fortune for it.

[Alice-Carousel in reply to StellaA]

My son has been under them for a year. I've spent a small fortune on equipment but now he is back at school is really bad again. They seem to want to ignore the fact he is Autistic and it will have an impact on what will or won't work for him.

[StellaA in reply to Alice-Carousel]

You didn't mention anything about autism before, does he have a diagnosis?

I had fears that Sophie was on the autism spectrum because her behaviour and continence problems all point towards it, but none of the tests she's had give any kind of conclusion other than blaming her premature birth and her mother's psychiatric problems for her poor development.

If Sophie had a diagnosis it would be enormously helpful.

[Alice-Carousel in reply to StellaA]

Yes he has a diagnosis. My youngest is waiting for his tests too, as am I.

Autistic children are well known to have comorbid conditions such as incontinence. My eldest is also diagnosed with hypermobility which is another common comorbid condition.

I wouldn't take them saying no about your granddaughter as gospel. Keep an eye on her and demand retesting if it appears to still be Autism.

My eldest had to do an IQ and cognitive test before his ADOS which he passed fine.

[DeeOwen]

Hi.

My son is 10 and we have just starting to get him dry. We had tried an alarm system that attched to the underwear and wrist and desmopressin a couple or so years ago and neither worked. It wasn't until the lockdown that he really started to get upset about it so I had a look around for alternative solutions.

I came across a lady called Alicia Eaton who specialises in child welbeing and she uses Neuro Linguistic Programming for all manner of issues with children and bed wetting is one of them. I kid you not, we had the first dry night EVER using her methods on the 5th day. Honestly, he nearly jumped out of bed the next morning he was so surprised. Reading her website she has also worked with may kids who are on the spectrum.

We had a few dry nights but not as many as I would have liked so we did invest in the Astric Medical alarm mat. Not sure what alarm systems you folks have been using but this has worked so much better for us. Yes it was pricey but teamed up with the NLP it has worked an absolute treat. He has only had 1 wet night in about 3 weeks.

The Alicia Eaton book is only about £7 to download and there is a recording you will need to access if you do decide to give it a try but again it's only about £6 or £7. Check out her website though and see what you think.

Hope this helps guys and stay safe peeps.

[Alice-Carousel]

I am not sure you really read my post........ It's highly rude of you to assume I don't even speak to my own child as well 🤣

I got to the bottom of the issue and he is back to no bedwetting again. It was something school were doing he sleeps fine btw, actually deep sleep is one of the reasons for really bad bed wetting as he won't want to wake. This has improved though thanks for his bedwetting alarm.

Been a fair few weeks of no accidents again now...so thanks but no thanks for your insensitive suggestions?