Toilet sits

[Kiran274]

Hi all

My daughter has successfully disimpacted and now we are on 2 sachets a day for maintenance

We have to do 3x toilet sits and she’s pooing but if she doesn’t do the toilet sits we experience soiling.

How long does it take for her to not soil and poo normal ??

Just want things to get better before September

Thanks !

[Bambie83]

We’re in a similar position (finished 3rd disimpaction since Christmas a few months ago) and I think routine is the key.

Its more than possible that it will take a long time for the stretched bowel to get back it’s control. I’m intending to be very straight up with my daughter’s new school, when she starts reception in September and make sure that we have a care plan if needed.

In the meanwhile we keep plugging away at the toilet routine (she seems to regularly do one after breakfast) so hoping to try to get her to do that before school every day. Then fingers crossed she can make it to 3pm without an accident...

[dharshana in reply to Bambie83]

my daughter is also pooping postbreqkfast and most of the times she doesnt clear herself fully.and so she poops again after lunch. any tips to clear her bowel fully

[Bambie83 in reply to dharshana]

I use bubbles but anything that blows and uses the muscles in the bowel.

Keep blowing even if they say they’ve finished try and get them to sit there for another few minutes. And (it sounds gross) but have a good look at the poo, you should be able to tell if it’s a decent size and also a good consistency.

[dharshana in reply to Bambie83]

how can we finally decide that their bowel is back to normal before/without stopping the medicines

[Kiran274 in reply to dharshana]

How long did it take

[dharshana in reply to Kiran274]

its been 4 months.she takes 8.5grams of peg 3350 daily

[Bambie83 in reply to dharshana]

Difficult to tell I suppose it’s a bit of trial and error. Keep reducing the maintenance dose until they seem to be doing 1-3 soft poos every day and next to no accidents.

Then eventually it will be so low you can remove it completely.

My daughter is now down to one sachet a day and we’re getting a decent routine and her accidents have reduced to a few little ones a week. So I think I will keep her on the same level for the time being. Perhaps reduce it to half if she appears to be better.

Though she’s starting school in September so it could go either way at that point!

[dharshana in reply to Bambie83]

oh thats so soothing to hear.how long she has been on laxatives totally

[Bambie83 in reply to dharshana]

Since Christmas. We’ve done 3 disimpactions since then but to be honest I’m not sure we quite went far or long enough with the Laxido first two times.

This third time has definitely been more productive. Fingers crossed so far.

[dharshana in reply to Bambie83]

she is already on one sachet right from beginning + probiotic twice. never changed her maintenance dose so far. so confused how to reduce. I mean from one sachet to half?

[Bambie83 in reply to dharshana]

Ah okay have you done a disimpaction already or are you passed that stage?

Maybe try and reduce to half if you think she’s ready.

[dharshana in reply to Bambie83]

we did disimpaction during mid of April and then she is on maintenance dose daily. I will continue for 2 more months and then try reducing.dont wanna make her gothrough horrible disimpaction phase again.

[Bambie83 in reply to dharshana]

No I agree - it doesn’t seem to be doing her any harm and it may give everything a chance to normal!

Good luck!

[Kiran274 in reply to dharshana]

I’ve done 3 disimpactions. I don’t want to do anymore either.

[dharshana in reply to Kiran274]

right .thanks for sharing your stories