Oxybutynin only option?

[AMOGO]

My daughter is nearly 9. Voids 10+ times a day, drinks only water. Urine measures 45-135mls. Referred to paediatric surgeon who wants to put her straight on to oxybutynin. I have fought for an ultrasound which I'm getting. But if this shows nothing abnormal are there other things we should do before putting her on this drug for the foreseeable?

[AMOGO]

Also we're in her sleep, approx 3 times a night. Has never been dry.

[Heidi_hi78]

Hi I have a nearly 7 year old girl who never been dry goes on toilet for poos we had to fight the n.h.s and have put complaints in we under 2 health boards she had the ultrasound scan the bladder assessment and a m.r.i we waiting results from the m.r.i at moment..3 years so far still no answers my daughter was out on a 8 to 12 week pathway from seeing the surgeon to testing this oath way is now 38 weeks this is why we are fighting the n.h.s and complaint went in .my daughter did try oxbutyin last year didn't work .we increase it didn't work she off it .my daughter is hypermobity .we are starting to wonder if she was wrongly diagnosed with this and could possibly be mild cerbal palsy we wait see what and if the m.r.i has picked up .I feel your pain x

[AMOGO in reply to Heidi_hi78]

Thank you for replying Heidi. I don't know where you live but could you try and get a referral to the Evelina at GOSH? It sounds like you need someone to take a fresh approach to your daughter and look at the other factors you mention. Good luck with the mri x

[Heidi_hi78]

We in Wales was under auerin Bevan health board they couldn't help us we under Cardiff the capital of Wales only 2 pedrctic ugloosit surgeon. We see what shows next. We are kind of thinking maybe down the route of genetic testing you read on here it's every where in the country it's a mess the fighting and the battle you got to do just to get anywhere with the n.h.s this is children lives the n.h s are playing with it's in a mess . Let me know how your side goes x

[janpanmol]

Hi there Heiduli. Your chat has provoked me to ask about my daughter. I have a 13 year old w primary enuresis. Had all the tests - bladder assessment and ultrasound but not MRI. What can this reveal? She’s been on desmo which sometimes works, oxybutynin which didn’t work. I’d always been led to believe it’s just one of those things and didn’t know there could be other causes. She’s also hyper mobile and has low muscle tone. All development stages have been delayed and she has mild learning difficulties. Should I be pressing g for an MRI? Sorry for hijacking your original question Amogo x

[Heidi_hi78]

Hi my daughter has had a m.r.i came back all normal range awaiting date for urodymanics studies and the scope .we been told 8 to 12 weeks that would of been Jan this year been told may been told August still waiting on a date .the m.r.i scan would show if all neves are coneted the muscle tone all came back normal it's been a long journey a long way ahead. Still .we now 40 on a 8 to 1# week pathway for the urodymanics studies and scope oct 31st 2018 we were told a 8 to 12 week pathway and today is August 4th 2019 still waiting .I would say push for m.r.i scan with your child .we had to put a complaint in as this is over 3 years for us still no answers .n.h.s is in a mess this is children's lives so why on Earth children are waiting years on the n.h.s good luck with child x

[AMOGO]

Oh Heidi I'm so sorry, I feel your pain. I'm going to venture down the homeopathic path while waiting for the ultrasound of the bladder. 5 months now for us so not as long as you but still frustrating.