I think my partner has peyronies disease - Erectile Dysfunct...

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I think my partner has peyronies disease

Concerned-partner profile image

I'm looking for some advice on peyronies disease. I think my partner may have it. He has problems with ED and when erect I noticed his penis was bent upwards. Over the past year he has suffered badly with ED and it's been difficult for him to talk to me. I try to talk to him but it feels like all I say is wrong. He is experiencing some discomfort at times too and I'm worried if we dont go to a doctor it might be irreversible.

Any advice or experience would be very much appreciated.

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Concerned-partner
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18 Replies

Is the bend increasing? If it is then seeing a doctor is the only option. Best wishes.

Concerned-partner profile image
Concerned-partner in reply to

Yes I think it is. He isnt very keen to discuss it with me not to mention a doctor.

in reply to Concerned-partner

Sadly a typical male response to a medical issue. Ignore it in the unjustified hope it will go away.

I wish you both well but can’t really offer further advice. He is lucky to have a concerned partner like you. Hope he realises that.

Concerned-partner profile image
Concerned-partner in reply to

In other words I just make him go and I go with him. Thank you.

If he sees a urologist they will want to give him a xiaflex injection. That didn't work for me. Instead I took L-acetyl Carnitine and iodoral 12.5 mg iodine supplements. Actually I took 1/2 doses of the iodoral. Don't over-do that as it could lead to thyroid issues. Not a doctor. Just saying what worked for me. The carnitine is available from vitacost.com. iodoral is available from Amazon. Worth a try. Good luck.

Concerned-partner profile image
Concerned-partner in reply to

So there is hope then. And has it gone along with any ED problems?

in reply to Concerned-partner

I had a downward bend type peyronies. Made sex very difficult. Problem gone now.

Concerned-partner profile image
Concerned-partner in reply to

Thank you. I'm going to have a chat with him and see if I can get him to the doctor. But I will see if he's willing to follow your advice. Can you give me an idea of how long you had to take them?

in reply to Concerned-partner

If it is going to work it should happen in 4 to 6 weeks. Good luck.

Dannyboy69 profile image
Dannyboy69 in reply to

how did you fix the problem?

Dannyboy69 profile image
Dannyboy69 in reply to

is that stuff over the counter?

Concerned-partner profile image
Concerned-partner in reply to Dannyboy69

Yeah I ordered it from amazon and Holland and Barrett, I'm in Scotland so we couldn't use the vitamin.com

osw19 profile image
osw19 in reply to

Hello WSOPeddie. I got circumcised 3-4 months ago and my partner recently pointed out that the tip on my penis bends downwards when it's erect. I've never noticed it, but the bending is very obvious and it seems to get worse every week. I've tried to reach out to my doctor, but the healthcare system here is just very slow.

For how long did you take these tablets? How many tablets per day?

when you say "took 1/2 doses of iodoral" does that mean you half a tablet every day?

Are these ones the same as yours?

amazon.co.uk/Iodoral-12-5-m...

vitacost.com/vitacost-acety...

in reply to osw19

I took 1 acetyl-L-Carnitine capsule a day.I took 1/2 12.5 mg Iodoral per day.

I'm still taking both of these but I reduced iodoral to 1/2 tablet every other day.

Georgefil profile image
Georgefil

See a urologist asap. I got it 2-1/2 years ago then diagnosed with prostate cancer, had a prostatectomy 10 months ago, not related but u should not let it go un-checked ... be proactive

Concerned-partner profile image
Concerned-partner in reply to Georgefil

We have had a chat and we are going to go and see the doctor together. We have done a bit of research together and it looks like the docs are going to go with the watch and wait approach from what other people are saying but we are going to go anyway. Thank you for the advice

in reply to Concerned-partner

Glad you are doing this

MrMac99 profile image
MrMac99 in reply to Concerned-partner

Yeah it's best to see your doctor

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