My 16 year old dayghter has seizures ... - Epilepsy South Af...

Epilepsy South Africa

722 members252 posts

My 16 year old dayghter has seizures while sleeping, especially in the morning hours between Midnight and 6 a.m.

Mpasi profile image

I just want to understand while 95% of her seizures happen when she is sleeping? Sometimes they happen even during the day when she is taking a nap. Why is this so?

18 Replies

Good morning, just to let you know my daughter is 5, she was diagnosed with seizures at the age of 2, my babies seizures also happens during her "wake up" time. She was on epilum 200mg morning and 200mg at night, it didnt seem to help until the neurologist added Keppra 250mg morning and 250mg night. Her symptoms are the same, she goes to bed and wakes up staring into space , she does not shake or froth etc, but always vomits after the attack. I seem to notice though that a day or two before the attack she seems to have a runny nose. Im not sure if theres any connection. Her scans all came clear, so lets just pray that she grows out of this. Please dont give up hope. Regards Tracy

Mpasi profile image
Mpasi in reply to Luann

I also noticed that when she has a running nose, she tends to have attacks. But I am also aware that too much TV is also contributing. The problem is that it is difficult not to let her watch TV as she does not like to visit friends nor play with other things. She is on Epilim 750mg and Redilev 700mg. The attacks still continue. I am just hoping this nightmare will one day disappear. Thanks for sharing

Luann profile image
Luann in reply to Mpasi

Hi, my daughter has been doing well with her current meds, yes i know how helpless we as moms can feel. I pray everyday, everyhour that this situation comes to an end. Yep I actually keep her longer afte school to "avoid" too much TV. How often does your daughter have them.............?

Mpasi profile image
Mpasi in reply to Luann

Sometimes she has two per week, other times once and at times she can go for three weeks without. The intensity has dropped though, i.e. it used to last for three to four minutes but now it takes about a minute and then three or so minutes to recover.

Luann profile image
Luann in reply to Mpasi

My doc says that the meds wont stop the seizures but will lessen the symptoms, mayb ask ur doc to increase dosage or perhaps change meds, my baby started off one in six weeks.

Hi luann...

your daughters situation sounds the same as my daughters,she also

wakes up with a blank stare n vomits thereafter..i would

like to know if u perhaps think it could be diet related?

Hoping they grow out of it soon..

Mpasi profile image
Mpasi in reply to Habz

Let us hope this thing will disappear. There is nothing that hurts me more than my daugheter going through this and I cannot help her in any way. But I am strengthened by this forum.

Luann profile image
Luann in reply to Habz

Yep I always thought that it is diet related, but my doctor seems to think otherwise. My daughter is a very poor eater, i find myself "bribing" her to eat. So i watch that she has a early supper and food that can digest quickly. Potato seemed to be the constant in all her attacks. Who knows were this horrible sickness came from, but im pretty sure its all the processed food we eat, my friend suggested we go organic..........

My daughters dr also doesnt seem to agree with the diet issue..he looked surprised when we mentioned she vomits after the attack,when i read ur post it gave me support that we not alone in this....

My husband strongly feels it could be cold foods..eg watermelon..grapes etc

Trying to make sense of it all...my daughters attacks

happen every 4to 6 weeks..hoping shr grows out of it...

thanx to both of u...n hoping our babies are cured completely!

Mpasi, you mention your daughter is at the age of 16. My epilepsy started at 16, which was basically due to stress from exams and hormones (puberty). Don't forget she is at the puberty/hormonal stage in her life and could be stressed in many ways. After 39 years of epilepsy, hormones played a big part in my seizures. Not I am menopausal age, they seem to have calmed down a great deal... Once again, I put this down to hormonal changes. Please mention this to your Neurologist when you see him/her, and with the added stress at her age, this could also be aggravating her seizure pattern.

RonelleD profile image
RonelleD in reply to

Hi There, my daughters monthly's also aggravate her seizures, also diagnosed when she was 13, shes 14 now. Could you please tell me more about what the dr's did for you when they diagnosed you? My daughter just drops...then she needs hours to recuperate from the seizure....along with nausea, migraines, extreme tiredness. She does not shake at all, she is semi conscious but doesn't remember what happens when shes "out".

Thank you.

Hi Mpasi, if i may ask, how do you know she's having seizures while she is sleeping? I ask because my 14 year old daughter is so sick in the morning that i just thought it may be happening while shes sleeping but i didnt know that it can actually happen. Please could you tell me how she explains what is happening?

Thank you :-)

Mpasi profile image
Mpasi in reply to RonelleD

Hi RonelleD, Yes my daughter's seizures happen more often in the small hours of the morning. I know so because she shares a bedroom with her elder sister and also that the noise she makes when having a seizure can be so loud that I am able to hear from my bedroom. So her seizure is loud therefore we are able to know. Good luck.

RonelleD profile image
RonelleD in reply to Mpasi

All the best to you too Mpasi, thank you :-)

Hi Mpasi - there are numerous different types of seizures. This is commonly knows as nocturnal seizures, that ordinarily occur at night or early hours of the AM - it is possible that these type seizures develop when a person is at rest and her mind is not active and focusing on other activities. The Epilepsy SA web site is likely to have more detail on Nocturnal seizures. If you have not seen a neurologist, I would advise you take her to one for a full assessment, where they can prescribe medication specifically suited to her condition. Regards Tim

Mpasi profile image
Mpasi in reply to Tdevilliers

Thank you.

Most sleep seizures (grand mals) happen just when you are about to fall into a deep sleep or the hour just before you wake up. It's no more or less dangerous than having a seizure during the day. I think its actually safer, because you're already in a comfortable and stable space/position. I have my "best" seizures in bed! Lol! No one to ask unnecessary questions afterwards...it happened...and your body and mind is so so so tired you need at least 12-24 hours to recover! Its really something to be grateful for!

You may also like...